new member in limbo
 

Hi there,

I'm new at this. My first symptoms were weakness in my left leg and arm and tingling on the left side of my face. I saw a dr where I live and he told me I had ms. No test were done. I since then have had 4 MRI's. told they were unverified. Saw a nero and had spinal tap, blood tests and sensory testing. All were normal. Still feeling week so my dr sent me for another MRI. This last MRI stated signs of dawsons finger was present. Not sure what this means I go back to see the nero in Feb 2009.
I would appreciate any thoughts or advice anyone can give me.

thanks

Hello and welcome to Neuro Talk, glad you found us sorry for the reasons. you will find many helpful people here. I will leave a link for the MS forum, dont hesitate to ask questions, and again welcome to NT

http://neurotalk.psychcentral.com/forum17.html

Hello and welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help.

Again welcome, looking forward to seeing you around.

Darlene :hug:

welcome to NeuroTalk ... surf the threads and jump right in ... am sure someone here will be able to answer your questions ... and here at NT you will find alot of supportive and helpful people ... again ... welcome to NT

My heart goes out to you, Sher. I've met so many people online who have been stuck in the limbo. Some for years. I don't say this to scare you beautiful, it's just a warning to steel yourself and be ready to FIGHT BACK against whatever the docs find. My diagnosis nearly killed me. And I mean literally. Long story... you can find it in the addicts, alcoholics and rehab forum.

Politely ---or not so politely--- remind them they work for you, no number of testing or evals is too much until thay have the answer. I recomend you start a journal. To load your guns on doc appointments. And it's a great tool as well for just clearing your head, so you don't have to just write about the disease.

Almost forgot...
One big, warm, tight, hug, handshake and howdy moose-size official type welcome to the site. This place is amazing!

You are not alone.:)
You are one of us.:hug:
And we are here to help.:grouphug:

Hello and welcome to NeuroTalk! How frustrating it must be to have symptoms and the doctors not be able to dx you. Dawson's Fingers is one of the MRI symptoms associated with MS but I'm sure your Neuro knows this and is just being careful and taking all possibilities into consideration. Have you gotten a second opinion? February seems quite a wait in order to see the doctor.

If you go to the toolbar at the top of the page and click on "search" you can type in "Dawson's Fingers" and find posts related to that.

I'm glad you found us...please let us know if you have any questions.

Hi and Welcome.

It really stinks to be in Limbo. There are alot of people in limbo here on the forum like Moose said and everyone is really supportive. I hope you get some answers soon. I'm glad you found us.:hug:

http://i115.photobucket.com/albums/n...en/welcome.gif

Hello and Welcome to Neurotalk - you will meet many great and supportive people here!!

I am so sorry to hear about everything that you are going through and I really hope you get some answers soon:hug:. Before I was diagnosed with CRPS (Complex Regional Pain Syndrome), I felt so alone so I do understand some of what you are going through.

We have a very active MS forum which you are more than welcome to join - I am sure all of the members there will be more than happy to answer any questions you may have, you may also get to have some fun also!!

If you need anything, please don't hesitate to ask - I am more than happy to help you in anyway I possibly can!!

Take care of yourself and I look forward to seeing you around the forum and in the Chat Rooms soon!!!!!!

Alison

Thanks for the advise. I have kept copies of all of my mri's and kept some notes but a journal would be more helpful. I guess I have been to laid back with the drs. I feel when I call them I am taking them away from someone else who is in more need of them. I go for massage therapy monthly to try to relax the muscles.. but that doesn't last for long. I last saw the nero in aug 2007 when the tests came back normal. I felt like a fool nothing wrong?? but still felt weak on left side. The left side seems to feel weaker now and the pain in my shoulder and neck don't seem to let up... not sure if it is the weather change or if just getting worse. Feb is not that far off. I will see him then and go from there.

thanks sherry

[QUOTE=herekitty1960;386877]Hello and welcome to NeuroTalk! How frustrating it must be to have symptoms and the doctors not be able to dx you. Dawson's Fingers is one of the MRI symptoms associated with MS but I'm sure your Neuro knows this and is just being careful and taking all possibilities into consideration. Have you gotten a second opinion? February seems quite a wait in order to see the doctor.

If you go to the toolbar at the top of the page and click on "search" you can type in "Dawson's Fingers" and find posts related to that.

I'm glad you found us...please let us know if you have any questions.

Thanks for the advise, I guess the waiting period to see this dr. is usually about six months. Hard to get in to see him. I have never gotten a second opinion because this dr. is suposed to be the best in ontario. He told my family dr. if I get any worse I can call him and he would see me sooner. I read lots of articles on dawsons finger. not sure if i liked what it said but a lot of information. I am going to keep a journal on how i feel and have it when i do get into see him.

Thanks for listening.
Sherry