Shock like sensations
 

One day, late in July, I awoke to pins and needles in palm below my thumb. It lasted for a long time and some of it really hurt (the needles?) Then I started getting the hurting of it elsewhere in my body, but it would only last for seconds.

Yesterday I was getting it throughout the day, here and then there. I now would describe it as shock like, it hurts. I'm glad it only lasts for seconds. The worse was when it happened next to my eye. I called it a night then and went to bed.

My neuro is on vacation so I went to my PCP. My dr. thought of several possibilities, calcium, magnesium, potassium; something with thyroid; more demyelination; Crohn's/B-12 (if I do have it) or seizures.

When it came to seizures he clearly doesn't know much about them. He's a good dr., but he was using the wrong terminology. He kept referring to generalized seizures when if it were any at all it would be partial seizures. I even corrected him and he agreed, but I still don't think he got it. He said I should be very careful as my brain may be working up to a tonic clonic.

He wanted me to try Topomax, but I told him I didn't want to.

I got some blood work done and if it comes back neg. I think he's going to order an c-spine MRI. He said if that's all neg. then it's probably seizures.

I don't think this can be seizures, because it jumps from one part of my body to another and can be either side. Am I right?

hugs

go post this in peripherial neuropathy. B 12 deficiency can cause all of this. simple blood test verifies it.

while you are over there, download LizaJane's spreadsheets for keeping track of blood tests. they will keep you organized and let you know what tests are available.

and remember, enough chocolate can cure anything.

Thanks Annie, I think you hit the nail on the head...not enough chocolate. :p

He is testing for the B12. I am still awaiting results on my biopsies from the colonoscopy. If is shows Crohn's I guess that could explain it. Maybe an infection could interfere with absortion, too.

What I wanted to know is if it was possible to be seizures. It doesn't seem to be.

I do need to keep a better log of my blood tests. I think I will ask for copies when they give me the results.

hugs

I have never been given a 100% "We are super sure" diagnosis, so for now - I like to roll with having a Seizure Disorder pending actual diagnosis. :)

However, I had an "Episode" of sorts; I will explain better below.

I had started off having tingling, and then a bit of needle-like pain in my pinky and ring finger on my right hand. This had eventually made it to numbness, and started to 'attack' several other locations of my body. The only other person I'd been able to speak with that day was a friend of mine with MS - whom also has similar 'episodes'.

The entire attack went on for around 45 minutes to an hour. I had eventually fallen asleep and woke up feeling perfectly fine. My Neurologist told me this was a seizure, however, I already have a seizure problem and mine come in so many forms I have lost count. I have a variety of focal seizures, along with drops, etc.

You should, if your blood work comes back negative, explore other tests available. I'd suggest having an EEG done.

Hope this helps, and don't be afraid - it may be nothing at all.

Make sure you update this!

I don't think my current epi thinks I ever had a seizure, but he never asked enough questions really and I didn't offer any more than he asked for. I think that was a mistake.

The blood work was all normal and my PCP wanted me to see my neuro. I had already spoken with her and she said to cont. with my chiro. Can you believe it?!

I saw my epi last week and he said he doesn't think it's seizures. He referred me to a neuromuscular spec. in his group. I have to get another EMG. I have tried to put this off before, but I do think I need one. He said about making another appt. with him, but since he doesn't think I am having seizures why should I? So, he said I didn't have to, but if I need him... or to let him know if anything...

I was misdiag at one time with MS. At least one dr. thinks it is still suspect. We'll see. I don't have too many symptoms now, so I don't think so.

hugs