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-   -   hello all (https://www.neurotalk.org/trigeminal-neuralgia/59058-hello.html)

Melina 82 11-07-2008 12:25 AM

hello all
 
Hello all, sorry i haven't dropped in for a very long time! i guess i should probably give you all an update things haven't been to good lately my pain is escalating all the time now i am still trying new medications at the moment i am on valproate 500mg and lyrica 75mg in the morning and the same at night all up i am taking 1000mg of valproate and 150 mg of lyrica so i am pretty tired at the moment i feel really slow alot of the time with the medication it is getting harder to sleep at night and to get up in the mornings my gp is thinking of sending me to a pain clinic has anyone been to a pain clinic what is it like i have heard bad storys that they treat you like you are a drug addict! :grouphug::grouphug::grouphug::grouphug:

Burntmarshmallow 11-07-2008 07:21 AM

Melina.. I have to say the oppiset with pain clinic in fact my pain doc was the biggest help, he saved my life he was the one who worked with me listened to me believed me and he is the one who suggested I try a neuro stimulator. Neuro docs on the other hand I havent had a good one .
Lots of people including docs say we are drug addicts you just have to show them that all you want, beg pray for is a med that works. if it isnt woring tell them write down the affects the pros and cons and try the next med. its the medication "Merry-go-round" .If doc says your a drug addict ask him to look into how T.N. people are treated and tell him to research how many drug we are put on. maybe the doc is the drug pusher.
I send low pain and a healing hug at you. Glad you posted I have missed you and been wondering . Sorry your pain is acting up and I hope you get it controlled soon! keep searching and trying different things, it is the only way to get things under controll.
Your in my prayers Melina. :hug: :hug:
PEACE
BMW

Melina 82 12-02-2008 03:34 AM

Hi Bmw, sorry for the delayed reply again, i have been experiencing more problems now on top of the tn i had some sort of a seizure last thursday morning and now i am being sent for an emg to see whether i have epilepsy now i also have been experiencing low blood pressure and dizziness and the doc wants me to do a 24hr bloodpressure monitoring, as far as pain with the tn i have been put on norspan 5 micrograms an hour control release i am starting that tonight so i will see how that goes i am still taking the valproate as well and the lyrica i think i am going to be well and truly dopey off of these meds soon i hope i dont get side effects with the norspan! will keep you posted!! :hug::hug::hug::hug:

dmplaura 12-02-2008 11:53 PM

Quote:

Originally Posted by Melina 82 (Post 418128)
Hi Bmw, sorry for the delayed reply again, i have been experiencing more problems now on top of the tn i had some sort of a seizure last thursday morning and now i am being sent for an emg to see whether i have epilepsy now i also have been experiencing low blood pressure and dizziness and the doc wants me to do a 24hr bloodpressure monitoring, as far as pain with the tn i have been put on norspan 5 micrograms an hour control release i am starting that tonight so i will see how that goes i am still taking the valproate as well and the lyrica i think i am going to be well and truly dopey off of these meds soon i hope i dont get side effects with the norspan! will keep you posted!! :hug::hug::hug::hug:

Oh you poor thing. I hope you feel better soon and get some relief. :hug:

Burntmarshmallow 12-04-2008 09:51 PM

Melina holding you in my prayers and positive thoughts. I hope the new med helps you. Let us know how things are going. it must be getting warmer there .thats a plus. It is not uncommon for a person to be having more then one thing going on. I have found there are people dealing with M.S. and also T.N. or other illness and t.n. . Most important to have open communication with all your docotrs. let them know how you feel and how things are affected ,etc so they can treat you the best most effective way. let all doctors know all the meds you take too as sometime the combo might not go good with the other med.
keep us posted and stay safe .
Low pain and peacefull times to you.
:hug:
:grouphug:
BMW


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