Undiagnosed illness...any suggestions?
 

I am a 33 year old who has been having trouble walking over the past year. I was a very fit individual who went to the gym 3/4 times a week but found 18 just over a year ago that I was finding difficulty running. After many blood tests, x-rays, brain and back scans, VEP's, lumber punctures and electrical tests the neurologist found a small lesion on my brain stem back in May. The subsequent lumber puncture found oligoconal bands however MS was ruled out by a specialist due to the position and type of lesion. A follow up brain scan in September showed the lesion had shrunk. My walking however is still troubled and getting worse, somedays down to 20mtrs. I have no pain, vision fine, sleeping usual and no pins and needles in my hands and feet. My legs feel like lead weights and I drag my feet alot. I can recover by just stopping, and then carry on with no requirement to sit down. My arms and hands also get very tired.
Does any one have any ideas? I'm definately confusing the docs and, as you can imagine, I feel totally imprisoned every day.

This helped me
 

Hi Bbird - I was having trouble walking as well - and I found a chiropracter that practiced a technique called Nucca - it changed my life. You may want to talk a doctor that practices this as well. It is not the usual bone cracking - it is a very gentle manuever. since I am new to the site I am unable to post a link - but you should just do a search for NUCCA which stands for: National Upper Cervical Chiropractic Association. Call and talk to someone - it may change your life..

Hi bbird,

That sounds very stressful to deal with.

The only experience I've had that was anything like that was when I had tetanus which is a central nervous system disease. I could barely lift my feet. It took me several steps to cross a single foot-square Saltillo tile. I could barely lift my kitty, on and on.

When that happened I don't remember getting additional pins and needles. I kept notes, and I perhaps should go and check them, but I need to go do some things will the sun is shining, since I have solar energy.

When I was the most sick with the tetanus it was hard to tell from day to day if I was getting worse or better. What I did in order to get clear on that, was to keep track of how long I could be up. By doing that I was able to see that I was able to be up an extra few seconds a day, as long as I didn't push my limits.

You might try keeping track of how long it takes for the symptoms to set in full force.

Then, you might try resting, like staying in bed for a day of the weekend, and seeing if that gives you more time before the symptoms hit full force.

My experience tells me that nerves do not like to be worn out and that when they recover it is with rest. If you find it is your nerves, then Methylcobalamin will help. Methylcobalamin regenerates nerves.

But, it's not fast. I'm not totally well and it's been years.
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