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-   -   muscle desease/CRPS (https://www.neurotalk.org/new-member-introductions/59705-muscle-desease-crps.html)

dominicana 11-13-2008 05:49 PM

muscle desease/CRPS
 
I am realizing that so many of us are in excruciating pain. Reaching out to you gives me motivation and hope because I do not feel alone in this. My Story. May 2007, I was involved in an auto accident and sustained injuries to my head, left eye, neck/shoulder, knee and legs. My short term memory was also affected. Since September 2007, I have been in desperate pain, Progressing from my left leg to both legs, to my shoulders and arms. My world is falling apart. My body, bones, and muscle always ache. One Orthopedic doctor DX CRPS and prescribed cymbalta amd it has helped. The pain persists and I am still seeing many doctors, i.e. Orthopedic, Neurologists, eye specialists, Rhumatologist, pain management specialist. I just developed imflamatory muscle desease, based on blood tests. My doctor feels that the RSD is affecting my body, as it is affecting my blood pressure. He is not an expert on the subject. I feel I need to do something. I eat well, I take supplements. I started to do yoga because It is to painful to exercise. Any one with inflamatory muscle desease due to RSD? Looking forwards to your response.
In support,
dominicana

Jomar 11-13-2008 06:02 PM

Hello dominicana,

Did you find our RSD forum already?
http://neurotalk.psychcentral.com/forum21.html

You mentioned injury to your head, neck and shoulder also... Have you read any information about Thoracic outlet syndrome {TOS}?
you might want to read a bit about that if you aren't sure of your RSD diagnosis.
http://neurotalk.psychcentral.com/forum24.html

This useful sticky has info on both conditions and various treatments -
http://neurotalk.psychcentral.com/thread84.html

Kitty 11-14-2008 07:53 AM

Hello and welcome to NeuroTalk! I'm so sorry for the reasons you're here but glad that you found this site. It's truly been a blessing for me.



Bannet 11-14-2008 11:18 PM

Hi and Welcome to NeuroTalk. I feel so bad that you are in such awful pain. I see that Jo has given you a few links to check out. I hope they help.

If you need anything just yell. We have a wonderful support system here:hug:

http://i74.photobucket.com/albums/i2...ff/welcome.gif

Darlene 11-15-2008 03:05 AM


Hello and welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help. We are all here to assist each other as possible.

Again welcome, looking forward to seeing you around.

Darlene
:hug:

weegot5kiz 11-15-2008 12:48 PM

Hello Dominicana and welcome to Neuro Talk, dont hesitate to ask if you need any help, follow that link and post all your concerns, there are a lot of helpful and kind people here, again welcome to NT

ali12 11-16-2008 10:40 AM

Hello and Welcome to NeuroTalk - you will meet many great and supportive people here!!

I am so sorry to hear about everything that you have and are going through :hug:. I also suffer from RSD, I have it in my left leg and right arm, I developed it when I was 12 years old, I am now 13.

If you need anything, please just ask, I for one, know how scary it can be dealing with this condition.

Take care and I look forward to seeing you around the forum soon!!

Alison

FranksAngel 11-18-2008 07:30 PM

welcome to neurotalk ... as you see there are lots of friendly and supportive people here .... we are just the 'tip of the iceburg' as there are so many more yet to meet .... i hope to see you soon on some of the forums ... again


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