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-   -   Bone density test (https://www.neurotalk.org/myasthenia-gravis/59772-bone-density-test.html)

erinhermes 11-14-2008 05:07 PM

Bone density test
 
Hello all! MY GP wants me to have a bone density test in a few weeks.......is that the "norm"?

I know that 'roids rob us of vitamin d, etc, but have your docs suggested a test for you?

I've only been on steriods for 7 months now, so I can't imagine that any real "harm" has been done - plus I take 1800 mgs of calcium w/vitamin d daily (per my hema)................

Do any of you crave WHOLE milk or OJ wit lots of pulp? I go through it like water!:D

Any input would be appreciated!

Erin

redtail 11-14-2008 06:52 PM

Yep Erin I've had 2 since I've been diagnosed.

The last one I had was good because they recommended a daily calcium intake to keep my bones happy and healthy while I am on pred.

Yes I do go thru stages of craving milk, and don't like the low fat stuff, and I can't eat oranges as they have bad effects on my, but ate a couple a few weeks ago, cos I was just hugely craving them?!?! wierd. Maybe they contain potassium, and I know I'm low in that, and I take tablets but still crave other things that contain potassium.
redtail

neutro 11-15-2008 05:19 AM

Hi Erin,
Yes, steroids cause osteoporosis and although a high calcium diet is strongly recommended, it is advisable to monitor bone density, I had my first check (as a reference) at the beginning 14 months ago and I will have the second one next January.
Be carefull with biphosphonate supplements frequently prescribed as they are reported to cause jaw bone necrosis…Dentists should be informed of their intake!
Maurice.

Scots Kat 11-15-2008 06:21 AM

I haven't had a bone density test and I've been on steriods for almost exactly a year now. Should I ask about this when I go see my new neuro or my GP? I don't want to put anyone out or look like I'm questioning their professional judgement.

I've been taking 800mg of calcium, no vitamin D and 50 mg for potassium. Those are just my supplements - obviously I get more nutrients from my food - I try to eat pretty healthy. Lots of fruit and veg. I didn't drink a lot of milk as a child.

Erin, I do crave juice but not milk (I'm still not a milk person).

Take care!
~Kathy

neutro 11-15-2008 12:10 PM

Yes indeed Scots Kat, I think you should ask for a bone density test, it is not questioning your GP's capacities but as I said, to have a reference to compare to later…(18 to 24 months between the first and the second).
You should also take a brand of calcium supplement which includes vitamin D because this vitamine facilitates the absorption of calcium.
Maurice.

erinhermes 11-15-2008 04:14 PM

Hello Maurice!
 
Maurice,
I hate to sound ignorant, but what exactly does jaw bone necrosis? It sounds awful - whatever it is!!!

Thank you!
Erin
Quote:

Originally Posted by neutro (Post 408434)
Hi Erin,
Yes, steroids cause osteoporosis and although a high calcium diet is strongly recommended, it is advisable to monitor bone density, I had my first check (as a reference) at the beginning 14 months ago and I will have the second one next January.
Be carefull with biphosphonate supplements frequently prescribed as they are reported to cause jaw bone necrosis…Dentists should be informed of their intake!
Maurice.


neutro 11-15-2008 07:20 PM

Erin, you may see this for info on jawbone necrosis:
http://www.yourlegalguide.com/onj/
Anyhow (Halloween is over) good night…
Maurice.


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