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-   -   Dallas and MG (https://www.neurotalk.org/myasthenia-gravis/60126-dallas-mg.html)

HiHo 11-19-2008 04:44 PM

Dallas and MG
 
It has been awhile since I have posted on here. Since we have last spoken...the air force moved us...much closer to children's hospital now. Dallas has been feeling great! In fact on Monday, we are headed back into surgery to remove his central line. He has had it in for 3 1/2 months and has not needed it in a long time for pheresis. The doctors have taken him off most of his meds and have really decreased his steroids. In fact we are hoping to be off of them completely in the next 1-2 months! He is feeling a little sluggish...but not soooo bad that he needs any help. He is going to be going back to school on December 1st. He and I are extremely excited. The school has been good enough to send a teacher to the house daily for school work. So he is not behind at all.
Hope this finds the rest of our MG friends doing well...Happy Holidays.
Heidi :hug: :D

erinhermes 11-19-2008 07:22 PM

That is wonderful!!!!
 
Heidi - THat is GREAT!!! I am so glad to hear that Dallas is feeling so good!!!
Your son is a real trooper!!!!

You/Dallas have been in my thoughts and prayers!!!!

Lets pray that remission is right around the corner!!!!

:hug:

Erin:hug:
Quote:

Originally Posted by HiHo (Post 411057)
It has been awhile since I have posted on here. Since we have last spoken...the air force moved us...much closer to children's hospital now. Dallas has been feeling great! In fact on Monday, we are headed back into surgery to remove his central line. He has had it in for 3 1/2 months and has not needed it in a long time for pheresis. The doctors have taken him off most of his meds and have really decreased his steroids. In fact we are hoping to be off of them completely in the next 1-2 months! He is feeling a little sluggish...but not soooo bad that he needs any help. He is going to be going back to school on December 1st. He and I are extremely excited. The school has been good enough to send a teacher to the house daily for school work. So he is not behind at all.
Hope this finds the rest of our MG friends doing well...Happy Holidays.
Heidi :hug: :D


redtail 11-20-2008 09:02 PM

Oh Wow Heidi,

Its so nice to have some nice new, I'm so very happy for you both. How exciting for Dallas to be going back to school.
thanks for keeping us up to date
redtail


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