Unusual Progression ?
 

I was diagnosed in December 2007 after months of numbness and tingling sensations in my toes (both feet). A few months later in March of 2008 I started feeling burning in my toes and feet. I am taking Lyrica for the burning which has helped a great deal. I have not noticed any further progression in my toes and feet since. Recently I have noticed a burning sensation in my buttocks and back of my legs when sitting. I do not feel this when standing. My hands are not effected.
Does this sensation in my rear end when sitting sound typical of PN or could it be another problem ? I am currently weaning off Klonopin and have read this can also cause burning sensations.

Thanks
Jerry

I am also curious to see and answer on this question. This morning while sitting here on my computer I got an agonizing burning sensation that started at my tailbone and spread across to my hips. I also suddenly felt the urgent need to go to the bathroom. I only got it to go away by getting on all four and tucking my head down to the floor. This really scared me but it only lasted about four minutes.

I do experience neuropathic pain in those areas. I guess in your case it is part of neuropathy, I don't know about klonopin though.

Perhaps it is time to talk to your doctor about doing something to halt progression, instead fo only taking meds for pain.

Hi Jerry

Seeing your avatar makes me cry. I was an avid competitive cyclist....I still have not given up the idea that I will be back on a bike, (not competing tho, getting too sick and old) My Trek is on a wind trainer waiting for me to have a moment of inspiration....for 5 minutes. I am older Jerry, 56, and have had PN for a long time. Yes, my rear end goes numb too....when sitting on it. Likely I sit too much. I have been on a bike in the last year (not much) and because of the endorphins I get, I always over do and suffer brutally after my escapade, even if it is less than 5 miles....part of my issue is deconditioning. All injuries result in deconditioning.

You have a lot of factors. Sounds like trauma, anesthesia? repetitive trauma, etc. Give things some time. Given your avatar is a cyclist....you are chomping at the bit to get back on that bike....my advice, wait until things heal up a bit.

PN does not progress the same in any one person.

Coming off klonopin is benzo withdrawal....do a search on what to expect. Yes, you will feel sensations more acutely.

I just went of Ambien....that too is a benzo....the ads on TV are not true. You get a full blown withdrawal syndrome.

Feel free to PM me.

And--
 

--given your cycling hisotry, there should definitely be some investigation done in the areas of the lumbosacral spine and its attendant nerve roots, and along the cauda equina--the "peripheral end" of the spinal column.

There are so many places nerves to the sacral area and lower extremity can be compressed--in the spinla column itself, along the pelvic girdle, near the pubis, even along the upper part of the thigh structure--that a good series of imaging studies would make sense. Moreover, "double crush phenomenon" effects are very common in this area--a metabolic/autoimmune or other compromise to nerve that is not producing much in the way of symptoms is then exacerbated by mechanical compression along the nerve, with the result that the symptoms become greater than the sum of their component parts.

I agree with Glenn...
 

also problematic are ankle compression sites.

I have a bad left ankle, due to a surgery when I was 12 for a tumor, and then a terrible spider bite on it which swelled and hurt for over 3mos, and also a steroid injection into it.

Whenever I flex it too much...too often, it flares and that foot really hurts. I can only do 5min at a time on a recumbent bike, and have to rest. No more than 20 min total! (or I will pay a price).

I think you can get overuse in the ankles like you do in the hand, because of that tight ligament that holds it together. Just the slightest bit of pressure or fluid retention, and then you can have nerve compression.

Whenever I see a biker show up here with various symptoms, I have to wonder...bikes can be so problematic for some people.