Fibromyalgia? - can't seem to predict it.
 

I have been diagnosed with RLS as early as 2002-2003. But about a year ago the bottoms of my feet started "burning" when I went to bed. I put lotion on them for a few months and that relieved the discomfort. I could not get to sleep while my feet were "burning". Then I detoxed off opiates and the real fun began.

I can start walking through the house and all is well. Maybe ten steps later, or even 50 steps later I get pain in my feet. So severe I can't put weight on them. I have literally crawled to a chair to sit until the pain subsides. AND it might subside in five minutes or it might be longer. No way I have been able to predict it.

I called my Neurologist's office and made an appointment....next spring. My PCP is an internist and seems to keep up with things, so I went to see him. He said it is probably Fibromyalgia. My Neurologist called me on the weekend and asked me some questions, then said he would try to work me in ASAP. Based on his questions and my answers he said it sounds like Fibro, but he still wants to see me.

Does any of this make sense to those of you who suffer with it? I have had sharp, searing pains across the top of my feet, the heel, the bottoms and what feels like inside my feet.

It actually got better when I switched from Ropinirole to Mirapex for my RLS.

My whole body gets these sharp, shooting pains. Hands, feet, and probably other places I just can't remember right now.

Does any of this make sense?

What meds do you use for relief from it?
Thanks for your time.....

Hi (((dllfo))) ....I have fibro, and some similar symptoms...but not exactly. I wish I had some easy answers, but I don't. Meds can help, and hurt. I have been on neurontin which helps some pain, and seems to increase other pain. Now I can't get off the Neurontin. :rolleyes: go figure... The soma I am on for my neck seems to help the fibro too. I think, partly because, it helps me to sleep some better at night. And it helps the spasms I tend to get all over. I have pain in my feet but not exactly like you describe. There are times when I don't feel like standing on them because it really hurts, but I can. It is not so bad that it takes me down. I have that in one of my knees, so I understand. Don't know why yet though. I hope you get some answers and help soon. You have to wait till Spring? :eek:

Mistiis,
Sorry to hear about your situation. While I am glad to get some feedback, I am sorry to have other people with similar problems.... hmmmm, that sentence may not make any sense to you.

I tried a lot of pain meds for my lower back, finally settled on Morphine and Oxycodone. Those meds stopped a lot of the pain for me. My mind does not function properly now, I am not sure why. Anyway, many of my problems are listed under Fibromyalgia and Peripheal
Neuropothy....I know I misspelled it, but for some reason I can't remember PN's spelling.

My problems move around. Last night I was pretty much ok until we went to bed. THEN my rib cage hurt, my right thigh and hip hurt if I put weight on them, my right calf muscle felt like someone hit me there with a ball bat... crazy things like that. I have no idea why, so I just accept it and try to find some position I can lay in which lets me sleep. I put my Ventilator mask on, the oxygen machine is already on, so with the machines turned on, I eventually go to sleep. Luckily for me, our local electric company gives people on life support machines a 30-35% break on the electric bills. I also have huge HEPA Air Filter next to the bed. It runs 24/7 in our bedroom.

There are over 100 different kinds of PN, so I guess it is what I call a "catch all disease".
I sure hope you get to feeling better. I take it one day at a time and hope the situation
gets better for both of us. I can't even tell the doctor when my problems began because the years on morphine may have masked the onset of it. :(

Thanks for the reply .... It kind of helps to know I am not the only person whose body has turned on them. Take care........Dave

Hi..........I have been dealing with this kind of foot pain for about 5 years.
Its really horrible at times. I have been diagnosed with fibro and probable
ms. I have finally found a few medications that seem to work(at least tone
it down.) Im not running a marathon nor can I do any exercise, but IM
able to do my daily things and sleep at night so Im pretty content.

I tried every treatment that 4 docs could think of....but nothing made
any difference. I hope you get the help you need.:hug: