Our latest drama and two happies!
 

So Megs was sick and had a couple seizures, so when Chris took her to the doctor (just our gp) they took a trileptal level. They called me today to tell me that her level is too high. So, Monday her neuro is going to call me with what to do... so this brings me to my question. What does a level that is too high do? We have never had a too high level... She is acting much better and her attitude is her usual 2 year old attitude rather than 2 year old + sick kid.

And... drum roll please... the girl is walking and GETTING PLACES!!!!!!!!!!!!!!!! CAN I GET A WWWWOOOOOOOOHHHHHHHHHHHOOOOOOOOOOOOOOOOOOOOOOOOOO! :D She is still unsure about standing up after falling, but when she starts from furniture or my leg or something like that she GOES! She is 2 years, 3 months, and 8 days old!

LAST HAPPY.... Her 2 year shunt-a-versary is TOMORROW!!!! Sept. 10, 2004 was the last time I had to send my beautiful, strong, fiesty lovebug in for shunt surgery. What a road we have been on, but THANK THE LORD we are doing great. Small dramas like getting sick and having some seizures, while frustrating, seem so much easier to deal with than surgery. Thank you all for being here for me during this journey. I am so happy to have you all along for the ride, and glad to be a part of your ride!

Congratulations!!! :D That's great news on your two happies! You must be so thrilled. And long may she stay away from those darned shunt surgeries. I'm afraid I can't advise you on your other question as I have no idea what trileptal levels are! But I'm sure some genius on here will. Love to you all and tell Megs to keep up the good work! xx

YAY for walkin' and shunt b-days!!!!!!!!!!!!!!!!! :D :D After all her poor little head went through early-on, this is a great piece o' news!

AEDs that are at higher levels than they should be can result in toxic effects, including (ironically) seizures. It all depends on how high it is and what the med is.



Love and hugs,

WL :)

They told me that the theraputic levels are like 16-35 and Megs is at 38.5. So not dangerously high I would imagine, but still not something we want. I will be interested in hearing what her neuro has to say. He has wanted to take her off Trileptal. I personally hate the topamax simply because it is harder to get her to take it. The sprinkles are an issue for me. It is hard to get her to open her mouth for them and she doesn't like soft stuff to sneak it in... so I sprinkle them in and shoot in the Trileptal and she swallows both. So, if we do away with the Trileptal, I'll have to find some other way of shooting some liquid in her mouth to get that topamax down.