chronic menigitis/cns vasculitis
 

Hi my name is Sam I have had 10 bouts of menigitis since 2000. I am now scheduled for a brain biopsy at John Hopkins, The problem is I am waiting 3 months ago my health has taken a serious downturn,my mental problems are getting worse with each passing day I am angry and agitated I devolped a problem with my right eye and got a new headache on a blood vessel that last's for days and nothing will help it. I need help now and I am becoming beyond frustrated with Hopkins I saw them 6 weeks ago and they are scheduling the biopsy from what I have learned is this disease can't wait many people get strokes I am dumbfounded at there lack of urgency while with each passing day I am getting much worse could use some sound advice.
Thank You Sam

Welcome to NeuroTalk, Sam!

Wow, I can't believe what a terrible time you've had with meningitis. I had no idea you could have that many bouts in so (relatively) short a time.

My advice would be to make lots of phone calls, until you find someone who will listen to you. If they hear the urgency in your voice, maybe they will realize you need to be seen right away.

Warm wishes and hugs to you. Let us know what happens. Will keep you in my prayers. :hug:

Thanks
 

I forgot to add I am getting the biopsy for cns vasculitis with symptons I have had I would be suprised if I did not have it.
Thanks for the response would be glad to hear from someone who has already been through it.
Sam

hello and welcome to neurotalk ... i am sorry to hear about all that you're going through ... you will find lots of friendly and supportive people here ... below is the link to the perpheral neuropathy forum where you might be able to find some answers ... i hope this will at least give you a starting point ... be sure to check out other furums and post whereever you feel comfortable ... and again ...
http://neurotalk.psychcentral.com/forum20.html

Hello and welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help. We are all here to assist each other as possible.

Again welcome, looking forward to seeing you around.

Darlene :hug:

Hello and welcome to Neuro Talk, you will find Neuro Talk is filled with some really helpful and wonderful people, so do not hesitate to ask question or concerns you may have. Again welcome to NT

Hello and welcome to NeuroTalk!



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