DuckysIntro
 

Hi everyone! Unfortunately I am not new to RSD. I had two episodes when I was younger. One when I was 13 and one when I was 18. I had rsd in my leg and foot, and with both occasions it came on suddenly with no injury. These episodes only lasted a few months and then went away. I am 32 yrs old and having my 3rd episode of RSD and this episode is the worst ever. My story of my 3rd episode sounds amazing and unique to everyone I tell it to including doctors. So here it goes. 6months ago I woke up with major swelling in my riight leg and ankle. And again I did nothing to cause injury. I didn't fall or get injured playing sports, nothing like that. It took 3months to get a diagnosis after seeing many doctors and getting many tests done, as I;m sure many of you are aware of. I have been going for pool pt which hasent been helping. With the amount of pain i am in daily it is very hard for me to bear weight in water let alone on land. One of my doctors has me on Lyrica but I am not noticing any improvement with that either. I have had 1 nerver block done and didnt have any luck with that either. My doc now is doing a treatment where a cathreter is inserted into your spine to have daily injections of steroids (i think) to try and reverse the rsd. He is also numbing my foot and leg and trying PT that same day to hope the PT's can work with me and my pain threshold a bit easier. But again I am not having nay results with that. My doc also wants me to take Cymbalta and to try not taking the percot. So I will see how well this goes over. Will post more later when I am feeling up to it. Can't sit in a chair for very long. I look forward to chatting with everyone. !

Welcome
 

Welcome! Sorry you are having to go through this again. I was dx'd with RSD in 1989, and it has never ever left. I think that it is great that you have gotten some periods of relief. But, unfortunate that you have ended back with RSD again. I was wondering if the "daily injections" were blocks? I look forward to hearing about your progress, so keep us informed. I'm sure you will find a supportive group here. My current treatment for full body RSD is HBOT. I have experienced good results, as well as have others on the forum. I guess one has to find what works best in their lives for treatment and for me that has been years of trail and error. All the best Di

Welcome to this forum. It's too bad that you need to be here (because of the RDS) but this is a good group to chat with, or even to just 'vent'.

Many of us just drop in to observe and see other stories. It helps to at least know that there are others out there dealing with same things.

Good to meet you.

Mike