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-   -   Quick Question - LDN (https://www.neurotalk.org/multiple-sclerosis/70552-quick-question-ldn.html)

KarenMarie 01-13-2009 05:12 PM

Quick Question - LDN
 
For those of you who are on LDN - if your neuro didn't - or wouldn't (mine emphatically will not) - give you an RX for it - how did he or she react when you got a script from your GP - or is it don't ask - don't tell ???

lady_express_44 01-13-2009 08:33 PM

My neuro wouldn't rx it about 4 yrs ago when I was looking for it, but he does now.

NO, he did not "care" that I went on LDN, he just wasn't going to rx it cause he had never had any patients that had tried it before ... so he regarded it as "snake oil". Even my doc thought that, and he really only gave in to my "demands" when I threatened to go to Mexico to get it. I still had to put together a very comprehensive "risk assessment" document for him, which took 6 months to prepare with all the brainfog I had at the time. :rolleyes:

I think some US Neurologists can be even more head-strong in not rxing it, although I've heard of some who will actually tell their patients "I can't, but go see your GP" . . .

It's YOUR body KM, and only YOU have to live with the consequences of your treatment decisions. If you have researched it fully, and are convinced it is a good option for you right now . . . then just keep fighting till you get it, no matter what "he" thinks. :cool:

Cherie

oldsteve 01-14-2009 05:25 AM

I am no longer on LDN. It just didn't do anything for me personally. Tried it for about a year.

But it was no problem getting my neuro to RX it for me. He said colleagues in his office had heard about it and he saw no problem in giving me a scrip for it. He was of the opinion "Why not? It can't hurt".


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