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-   -   noteworthy first (https://www.neurotalk.org/parkinson-s-disease/71647-noteworthy.html)

paula_w 01-16-2009 05:47 PM

noteworthy first
 
To my knowledge, this is the first time a roundtable will be webcast with questions accepted by MJFF.

January 16, 2009
MJFF Announces Virtual Research Roundtables for 2009

Research Roundtables hosted by The Michael J. Fox Foundation in various locations across the country bring patients and caregivers the latest news, advances and breakthroughs in PD research from the world’s top neuroscientists. Starting on Monday, February 9, a series of three 2009 Research Roundtables will be Webcast live to allow even more individuals to hear from our expert panel and submit their own questions on PD and the state of research toward a cure.

The February 9 Virtual Roundtable will be Webcast live from Atlanta, Georgia. The program will feature MJFF Co-Founder Deborah W. Brooks and Vice President of Research Programs Todd Sherer, PhD. During Q&A, audience questions (both from attendees in the room and in the Webcast audience) will be addressed by MJFF’s chief scientific advisor, Eugene Johnson, PhD; senior medical advisor, Irene Hegeman Richard, MD; and Executive Scientific Advisory Board member Susan Bressman, MD.

Log on at 6 p.m. (U.S. ET) on Monday, February 9, to view the presentation and submit your own questions to our panelists. If you can’t make the live event, visit our site later to watch the archived video. Either way, you’ll hear the latest PD news from our world-class research staff and scientific advisors.

http://michaeljfox.org/newsEvents_mj...cle.cfm?ID=288

indigogo 01-16-2009 07:54 PM

roundtable next Tuesday
 
Paula -

It's a good thing they are doing; gives everyone a chance to see what's going on.

I'll be going to their, what turns out to be, last Roundtable that will not be webcast, next Tuesday in the Seattle area.

I sent Katie Hood an email about some patient concerns (ways to be heard, need to understand more about subtypes for clinical trials, etc), reminded her that we had met at the MJFF GDNF meeting in 2006, and hoped to connect with at the roundtable, and was pleased to get a very nice response from her today.

So it looks like I'll have a chance to speak to her; I plan to give her our "top 10" from this forum combined with some top 10 suggestions that Peg got from the Parkinson's Toronto Listserv.

Should be a day for celebration, given the inauguration, et al!

Cheers!

pegleg 01-16-2009 10:46 PM

Indigogo
 
we'll look for you! And let's swamp them with questions! :)
Peg

indigogo 01-16-2009 10:57 PM

Peg - I wish you could, but the one I'm attending next week will NOT be webcast; the first one will be in February from Atlanta.

Thanks for sending that info from the Toronto Listserv on the Top 10!


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