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-   The Stumble Inn (https://www.neurotalk.org/the-stumble-inn/)
-   -   if one wants to talk (https://www.neurotalk.org/the-stumble-inn/72090-talk.html)

PJAMES 01-18-2009 11:08 AM

if one wants to talk
 
if one wants to---is it best to----find someone and PM.

call someone who cares? post here? just keep it inside?

I am not being sarcastic or caustic.

I just have a lot of questions and a lot to say---And It may be me---But I really feel---Like I don't belong ---And that I bother you------

I just really do not know who to ask any of my questions to----Maybe I will just keep them inside----And please before----I am not depressed---K----And do not take that as I am being rude---

Thanks for your input if you chose to add any----

And if I should go away because this is not a great place for the 1 million questions forum to be---tell me---i will----Now that I have an answer----That opened the doors to many many questions---sorry----

OK I must start handicapping The Fairgrounds in N'orleans today....I am behind

AfterMyNap 01-18-2009 11:23 AM

Hey, P,

It's totally cool to ask all your questions! We all started somewhere as newbies and not knowing anything about this crappy disease. This place has tons of forums on all kinds of topics.

Don't feel out of place, shoot, when you think about it, NONE of us belongs here— no one banked on getting a disease that messes with virtually every part of us at every minute. It doth sucketh and there is simply no getting around it!

This Stumble Inn is where we come to mess around; a lot of us have had this disease for a lot of years and just can't take it so seriously anymore. Sometimes, just thinking about it drives me nuts. I think I can speak for everyone here when I say that every day presents us with issues we don't understand or like. Each day also presents us with opportunities to build on the positive, the humor, and our relationships.

Just jump right in, dude, the water's warm! :)

Kitty 01-18-2009 11:32 AM

Yeah....what Cindy said!! You're not bothering anyone, Pete.

My suggestion would be to start a thread on the MS Forum for each individual topic you have a question about. That may mean starting multiple threads but that's okay. Some of your questions may be things others have questions about, too, but just haven't posted about. This way, your questions can be addressed and issues won't get lost in a thread about multiple things.

Believe me, you're not alone and I think we've all felt alienated by this disease at one time or another. I just cannot dwell on it too much 'cause it gets me down....so I come to The Stumble Inn so I can be silly. But....I have a dx so that makes our situations much different.

Post your questions and let's see if we can come up with some answers! I'm always up for a challenge!!

ali12 01-18-2009 11:35 AM

Hi PJames,

As AMN said, you are more than welcome here and you always will be!! I'm sorry that you don't feel as though you fit in but please know we are all here for you and will try and help you in anyway we can!!

I don't have MS (although I do have a condition that is fairly similar and my nanan had Progressive MS) and everyone here has been SO nice and friendly and helped me more than they will ever know and made me feel welcome!! If it wasn't for these guys, I honestly don't know what I would do - they are all the best and have helped me in so many ways!!

Please don't feel that you can't ask any questions that you want to - of course you can and we will all be more than happy to help you if we have any experiences or just give you a shoulder to lean on when you're feeling down. Please don't stop posting - I honestly think it will help you to have someone to talk to and to be able to let your feelings out even though it might not feel like it at the moment!!

It really is up to you whether you want to post on the forum or whether you want to PM your friends directly - if I was you though (and you don't have to do this if you don't feel comfortable), I would post directly onto the forum as there are a lot of people there and you are more likely to get someone who has been through the same as you that way!!

Please know that we ALL care about you and want to help you if we can - we hate seeing you down and want to try and help you if we can and we will ALWAYS be here for you whenever you need us!!!

Take care of yourself and if you ever want to PM me, please feel welcome to!:hug:

weegot5kiz 01-18-2009 11:50 AM

Ok James spill it, whats up? maybe some of us have been where you are or are there now, you may also help others by posting and then they will see hey i am not the only one, and some of us may have a suggestion or two for what is troubling you, people dont bite, I was in a tailspin when i first met a lot of these wonderful folks, and i can not tell you how much they have helped me, dont hesitate, we are here

Taffy 01-18-2009 12:12 PM

Please feel free to post your questions. I know from people doing that, that is how I learn. Hey, I am still learning.:hug:

lady_express_44 01-18-2009 12:12 PM

The only thing that most of us have in common, when it comes to this disease, is the name of it. Even that might only be a temporary fact, until they figure out that perhaps we just have different variations, strains or diseases that cause similar damage . . .

Some of us have had this for many years and think we’ve seen it all . . . at least until someone comes along with a completely different set of circumstances. It’s not just the disease differences though; it’s cultural, coping mechanisms, attitude, prior life experiences, lifestyle, med choices/obstacles/limitations, etc., that makes each of us unique in our journey.

I think that’s why this disease can be so lonely though . . . no two people are exactly the same. We are all in our own place, that no one person can relate to entirely. The other thing is that we are all unwell at times, and even IF we think we can offer some wisdom, we don’t always have the energy or brain-power to do that.

The good news is that there are enough people here that at least SOMEONE can generally offer us guidance or support for each of our challenges. Hopefully that gets us through to the next obstacle . . .

Cherie

SallyC 01-18-2009 02:45 PM

What they said, Honey. Ask away..:hug::hug:

NaeNae 01-18-2009 02:52 PM

I have been there for you......I have answered emails....texts......phone calls. Have tried to give you good advice and help you out...right now I need ME time, sorry if you don't understand. I hope others here can help you....help answer your questions.....I am having several personal issues going on right now involving my children....my ex.....and I just lost one of my closest friends....please understand that it is not YOU, I just need some time before I can be of any help to anyone else.

SandyC 01-18-2009 03:33 PM

Pj, as you can see there are many here responding. I've read all of your threads and watched many respond so I am not sure why you feel alone. Maybe your just having a bad day and feel left out. Hop back on the horse and spin over to the MS threads and post away. Also, whenever someone cannot be there for you, there are many waiting in line to help out in that persons place. We are all in this fight and sometimes it's all we can do to take care of ourselves as well as others. :hug:


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