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-   -   I am at my witts end! (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/76791-am-witts.html)

iverr6 02-05-2009 10:51 PM

I am at my witts end!
 
I fell of the back of my motorcycle about a year and a half ago, I was out for just a few moments I was wearing a helmet and walked away without any serious injury, I remember everything except the fall itself. 24 hours later I started having dizzy spells, a weird sense of balance, and feeling of heaviness in my head, thankfully my cognition has stayed intact. I went to the Doc had the imaging tests done, all was normal. After all this time I still have had no improvement, every day I struggle with the desire to even going on living, I feel like I'm trapped in a glass box, I can see the joys of my life but can't touch or feel them, the job I once loved is now a nightmare. The only thing that has kept me going is the hope that I will heal, and of course my children. I have tried everything Accupunture, Hyperbolic chamber, therapy, vitamin regiments, and exercise. I have stopped seeing Doctors I'm just going in circles with that, there is nothing they can do. Cigarettes have become my only friend. I feel hopeless, helpless, and desperate I just dont know what to do at this point I am at my witts end with this!

Jomar 02-05-2009 11:32 PM

Have you read about upper cervical adjustments?
also called atlas/axis or c1/c2?

http://www.upcspine.com/approach.htm
http://www.upcspine.com/anatomy5.htm

there are many more sites with info about it and some online videos too- they will show you some of the ways it is done.

iverr6 02-05-2009 11:52 PM

Interesting, I have a lot of those symptoms list on there, a lot of them. Is this purely a chiropractic thing, are they certified in this or can pretty much any Chiropractor do it?

Lucy 02-06-2009 04:40 AM

Iver66
 
Hi, are you taking anti depressants and are you sleeping ok at night. I found that once this was sorted I felt a little better.

Another thing which has helped me is a strict routine with rest times. I am 7 and half years post minor accident. I also feel that health professionals have not been of any help - in fact down right depressing.

I had sessions with a psychologist about grief and acceptance. About all that did was make me more depressed as nearly every session ended with me crying all the way home - and I never cried previously.

So with the psychologist wanting me to grieve and accept what I had lost and other specialists telling me there was nothing showing in my scans mri etc I just about went crazy. But underneath it all I had enough faith in myself to know that I was not crazy and when I was not too tired I could function just about as well. (in my mind just about as well)

Some where on this site I have quoted my daily routine and yes it is lousy that it is the only way I manage to have some quality of life -

7.30 - 8.oo out of bed, 11.30 - 12.00 brain nap - somewhere quiet, alone and out of sight - if I am out I have to go to my car and tip the seat back and shut me eyes. Around 3 - 4.00 oclock go to bed for an hour and hopefully sleep. I tried to work with this routine as well for about 6 years until I finally went crash. In the end I think it was depression and my mother dying that finished my work career. If it had all been managed better I think that I would have coped better.

So - my advice - anti depressants, sleeping pills if you are not sleeping AND a strict routine to avoid becoming too tired.

Tiredness makes EVERYTHING worse. I have found all this out the hard way. I just wish I could plug into some energy source! Or that there is a wonder drug that will keep me awake all day without causing any more pain!

I do understand how you feel - I have been there and thought and said the same things.

Hugs

Lynlee

iverr6 02-07-2009 12:08 AM

No I don't take anti-depressants and I have been sleeping, really I have had no cognitive shortcomings at all, which is a good thing. I have had the same experiences with Therapists, nothing about recovery really just acceptance and "it is what it is" attitude that I should adapt. Doctors have been a real disappointment as well, I felt no real desire to help from them just endless test that cost thousands and offer no resolution to the problem. I dropped all of them, and decided to just go it alone day by day hour by hour sometimes, but I tell you it is hard and I am tired, but I have a family to support so I keep going. I truly feel trapped inside my head, trapped by my circumstance. I still have a lot of anger, a bump to the head and life as you know it is over.... what a cruel joke that is.

vini 02-08-2009 05:12 AM

hi
 
hi the inner ear is the key to this ,with me my CSF leak is effecting my ICP which intern effects the inner ear, do you have tinnitus this is a good indicator that damage has acured tchi chi is something we do at the head injury center I attend

search along these lines http://www.mayoclinic.com/health/dizziness/DS00435

keep posting it helps us all

iverr6 02-08-2009 08:47 PM

I have often wondered if this was a vestibular thing or some kind of neck injury I am suffering from, I do have a lot of neck pain/stiffness and clicking sounds, plus the fact that I have had no cognitive deficiencies at all, but like I've said the Docs just don't seem to hear me out even the ENT I saw, they just label it and I'm off the the CT/MRI machine, LOL.

Jomar 02-09-2009 01:01 AM

Quote:

Originally Posted by iverr6 (Post 461015)
Interesting, I have a lot of those symptoms list on there, a lot of them. Is this purely a chiropractic thing, are they certified in this or can pretty much any Chiropractor do it?

You would need to ask if they do upper cervical adjustments-
here's a page where you can do a search for chiros - location, techniques etc -
http://www.chiroweb.com/locator/

lynnschreiber 02-16-2009 01:32 PM

sounds familiar
 
I just sent my first post today. My son, 19 now, went over the handlebars of his bike in Aug. 2007. The right side of his face was one massive abrasion. He did go to ER but they sent him home with diagnosis of concussion. They did not do an MRI. We watched over my son for the next few days but he was perfectly normal. Three months later we noticed when he was home from college, an odd comment or an unusual reaction to something. His girlfriend reported to us that he wasn't socializing with his friends. In January 08, 5 mos. after the accident everything accelerated and worsened and for months my son was treated for mental illness related diseases. Then finally a savvy neurologist saw my son and told us he thought he had TBI from the bike accident. But the bike accident happened months ago we said. Then we learned that symptoms often don't show up for months later as in the case w/our son. It's been a nightmare ever since and I think my son has those same feelings that you do. He feels like he will never be helped. It's an endless cycle. Worse thing for us is, and maybe for you, we dont know if there's an end in sight.

Jrunner 02-16-2009 05:05 PM

Hey there!
 
Quote:

Originally Posted by iverr6 (Post 461632)
No I don't take anti-depressants and I have been sleeping, really I have had no cognitive shortcomings at all, which is a good thing. I have had the same experiences with Therapists, nothing about recovery really just acceptance and "it is what it is" attitude that I should adapt. Doctors have been a real disappointment as well, I felt no real desire to help from them just endless test that cost thousands and offer no resolution to the problem. I dropped all of them, and decided to just go it alone day by day hour by hour sometimes, but I tell you it is hard and I am tired, but I have a family to support so I keep going. I truly feel trapped inside my head, trapped by my circumstance. I still have a lot of anger, a bump to the head and life as you know it is over.... what a cruel joke that is.

Man does your story ever sound familiar.... I have been dealing with post concussion for 21/2 years now. It has gotten better but very slowly, and sometimes going backwards for periods. I just came onto this site recently and would like to rececommend something that has put me back on the "normal" map! Magnesium/ Calciaum pills! Someone else mentioned them on here and I started taking them last week. This is the best I've felt in years! that "foggy" feeling with associated dizziness is pretty much gone! (knock on wood) I can definitely tell I'm not 100% but I can focus and have normal conversation with eye to eye contact without feeling like I'm just stuck in my head! If that makes any sense... I don't know who you are but don't give up. This thing might take a couple-few years to get out of. I know it sucks...But I'm that guy who loved his job to, was very outgoing and loved life to the fullest, and then had it stripped away in an instant.

Things are defintitely better for me today and I'm happy to be here. I have found that I've had to re-invent myself in some ways. At least for the time being.

I've been doing a lot of research on this lately and if I find anything I'll definitely post it here. I'm not kidding about the Magnesium/ calcium pills though! What a difference they've made.


Keep on keepin' on!

Jeremy

Jeremy


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