NeuroTalk Support Groups - Finally! A plan!

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- - Finally! A plan! (https://www.neurotalk.org/myasthenia-gravis/78127-finally-plan.html)

erinhermes

02-17-2009 03:12 PM

Finally! A plan!

Saw my neuro today! He kept me @ 60 mgs for a while - doesn't want to risk another "crash" but wants me to have IV IG every month for several months! Finally! A real plan! I was tired of crashing and having to stay in the hospital!

Next month I go down to 50 and then after another round of IV IG - 45 and so on.........:D

The funny thing is that @ the beginning, I was so scared of needles that I would cry and cry every time they placed the line, and now I "volunteer" to pull the line - just to irritate the nurses......:D

I go in 2 weeks from today to start another round. :D

I feel like we are finally getting somewhere!

:hug:Erin:hug:

Gdbyrd

02-17-2009 04:44 PM

That's AWESOME! Glad to hear you are going to get things to work for you!

nemsmom

02-18-2009 12:24 AM

Wow!

Hi Erin,

How Awesome!

I'm so glad your neuro has a plan for you! That has to be a relief to feel like you have an idea of what to expect.

I hope you're feeling good tonight.

Kristie

Quote:

Originally Posted by erinhermes (Post 467144)

erinhermes

02-18-2009 03:40 PM

Feeling SASSY!

I am feeling awesome today! I am sooooo happy there is an actual "plan" in place now...........

I was able to work and feel pretty great about that as well..........

09 is gonna be good!

:hug:Erin:hug:

Quote:

Originally Posted by nemsmom (Post 467387)

Hi Erin,

How Awesome!

I'm so glad your neuro has a plan for you! That has to be a relief to feel like you have an idea of what to expect.

I hope you're feeling good tonight.

Kristie

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