New Sx...should I worry about this?
 

Ok for the last week or so if I turn my head or bend a certain way I have what can only be described as electricity flashes. If you have ever played with one of those little lightening ball things with the electricity flying around in it (you touch it and the electricity follows your finger around), you will know what I am talking about.

It doesn't hurt. It just feels very odd. Now seeing as it is not painful I have not bothered to call my neuro...mainly because I am in the process of finding a new one.

Has anyone else had this? Does it turn into something worse? Should I be worried? I am honestly more concerned with the On in my left eye that has been there since Dec than I am about this or the numb legs I have had since August. I am terrified that these two things are never going away.

Sounds like L'Hermittes Sign honestly.

Maybe someone else will think of something else, but that's how my L'Hermittes presented.

You know I have reached a whole new level of annoyance with this MS thing! I mean seriously enough already! Can i please pick the disease that is behind door number 2? The one that is treatable if not cureable??

That's L'H... for me too. I've gotten used to it.

You might want to make note of the first time you felt it and keep notes to talk to the neuro about it.



Niko

If what you are experiencing is L'Hermittes it is caused by a lesion(s) on the cervical spine. There are other causes for L'Hermittes and is not exclusive to MS.

When you bend your head down you get sensations ( electric shock, vibrations/buzzing) for a second or two but the sensation can be repeated everytime you bend your head down.

I have had this symptom for 23 years. For me it's not painful just annoying. I get vibrations/buzzing from mid spine down. There really isn't anything you can do about L'Hermittes. If you have pain with it your neuro can try some meds for pain but it won't stop the L'Hermittes.

Here is more information about L'Hermittes:
http://www.themcfox.com/multiple-scl...ittes-sign.htm

Yep, get this annoying SX too. Sometimes it's from turning my head, sometimes bending the head down. :rolleyes:

Yupp, L'Hermittes was one of my first signs of MS....Aggrevating dang disease..:mad:

:hug:

Hi legzzalot,
I didn't get the L'Hermittes symptom until 20 years with MS. I was at work and was on the phone a lot. I was tilting my head to the side to hold the phone with my ear and my shoulder (to free up my hands).

I got such a strong shock down my back I thought someone put a 220 volt wire on the back of my neck/shoulder. I turned around to see if someone was behind me doing this. It was the strangest feeling.

All the years prior, since first dx'd, I had had tiny shocks anywhere on my extremities, like a bee bite. Nothing was ever there.:confused:

I didn't have a clue it was MS related. I thought I pinched a nerve or something. After that first huge shock, I now get them in my upper left thigh as a tiny shock and a tingling sensation when I or the Neuro bend my head forward and down. I also got the MS Hug around the same time.

At this same 19-20 year mark, my once a year, or occasional exacerbation turned into 4 relapse a year. I saw a MS specialist, instead of my Neuro and it was explained to me that they were MS symptoms and injectable treatments were available instead my usual oral steroids.. That is when I went to Avonex and then Copaxone.

I never used the computer, other than for work purposes, so I didn't know all the symptoms. I was too busy trying to raise my family and work. Then work became too difficult, relapsing so often. I still have had one or two relapses from heck a year.

Due to the the residual damage, I am now labeled SPMS with relapses, some Neuro's still say RRMS . Always the odd duck. :cool:

I bet there are plenty of MS symptoms I still don't know about. I hope and pray I never find anymore.