New member. I think I have PCS
 

Wow, I cant believe everything I have read on this forum/site. Its like hearing over and over again what I have been trying to explain to doctors for the past 2 months.

Ok, so this is my story. Its not as bad as others I have read, but it has completely turned my life up side down.

Late Dec 08, I was doing something in my kitchen. I hit the side of my head on an open over-head cupboard door corner............ that's it!! I rubbed it (it hurt) said a choice few words under my breath and then carried on making dinner.

A couple of hours later when I went to bed, the room started spinning, I had pain in my right arm and my mouth went numb and started feeling sick. I had a concussion??? I made sure I could sit up, move everything, and then went to sleep as I felt really tired. The next morning I woke up, felt dizzy and sick again so slept for another hour. Woke up and took my boys to daycare.

A couple of days later I did go to the hospital to get checked out. A friend of mine told me that a friend of hers, her son had fallen out of a bunk bed, hit his head and is now fighting for his life in a coma. There was more to the story that I wasn't aware of, but that was enough to start the panic in me - what if that will happen to me??

Anyway, got checked out by a doctor - all ok. They did suggest a CT but I said no as we were trying for baby and I may have been pregnant (I wasnt).

About 3 days after that, I was watching tv with my hubby. All of a sudden, I went extremely dizzy & had nausea. I got REALLY scared - thought I was going to die??? Anyway, went back up to the hospital - they checked me over again - all ok. Now since that night, I have had 'problems' with my vision. Its like I cant trust what I see?? I feel 'out of it' & 'not sure if I am really here'?? Took me ages to drive our car again.

Following that, I just went down hill. I was up at the hospital every second day. They told me it was 'in my head' or that I'm stressed - try deep breaths?? and one doctor walked in and said it could be a tumor or even MS. Told me to see my GP and then he walked out. I became on first name with the doctors. Then I was admitted with a UTI (something I have suffered from since birth). A week later I was admitted again. I had been having panic attacks where my husband and mum would have to call an ambulance out for help. Finally I had a CT scan done - all ok. Had chest x-ray - all ok. Had full bloods - all ok. The next step is to have an MRI done (because I may have a tumor??). I live rural and the closest hospital that has a MRI machine is 19 hours away. I have to pay for it privately and the specialist too. I have to pay for my flights, and my mum's aswell as she is coming with me plus accommodation. Not going to be cheap.

So I was doing a bit more research on the net tonight and came across PCS. I feel so relived. Maybe I'm not loosing my mind after all.

The biggest problem for me is that I am 27yrs old. I have 2 small sons - 2 & 4 yrs. We were trying for another, but have had to put that on hold. My boys have really suffered through this. One minute mummy was a happy playful mum. Next minute I was crying, in hospital, had ambulances around. Its not nice for them.

I did start seeing a chiropractor, but he didn't really help. Now I am seeing an acupuncturist. He is fantastic. He helped ease the tight muscles in my neck which drugs would not.

My symptoms are:- Shooting pains through my neck & head. The feeling of being 'out of it'. Noise & light sensitivity. Getting cranky easily (not nice for children). I was bedridden and couldn't eat for a week, but have gotten over that. The anxiety was quite bad as I am naturally a worrisome person, but is getting better with more knowledge with whats wrong.

So I guess what I am getting as is.... I only just hit my head on a cupboard door!!! Nothing major, I have hit it worse in the past and nothing like this has happened!! Most websites I have visited says that general PCS lasts no longer than 3months. Has anyone else out there only hit their head minor and recovered in that time?? I really want to get back to being the mum my boys deserve, be happy again and get back to our plans of having another baby.

I WANT MY LIFE BACK!!! :(

welcome
 

hi niki

sorry you are going through this stick with the investigations the doctors are performing to put your mind, at rest we are not doctors so can,t say that pcs is the problem , your symptoms started the night you hit your head, but its prudent to rule out any other possible causes take plenty of fluids multi vitamins plus omega 3/6 supplements , check them out on the web and ask your gp if its ok

you are not alone with this so feel free to comment on any post

welcome

Niki I would not worry about a tumor to be honest a CT Scan would see a tumor as probaly would blood work if it was cancerous,either way CT Scans pick up tumors that's a fact,your story is alot like mine and while mine has been going since Nov.of 28th which sounds long but actually around 15 months it has gotten better,see i was hit but not knocked out also I actually heard that someone with PCS as mild as ours actually has worse symptoms however it will get better.

Thank you. I slept so much better last night which thinking I am know whats going on in my head. I had a mild concussion the night I hit my head, but I didn't get any other symptoms until a week later. That's what puzzled me so much.

So what now??
 

So how does someone with PCS live? Should I just keep going with life as normally as I can until one day I feel better?? I am lucky in the way that I do not have to work. I just stay at home and look after our boys.

I do find it really difficult though how one minute I will be ok and happy, and the next I will be teary for no real reason. Is this normal?? :confused:

Just take it moment by moment. Try to not get too wrapped up in the highs or the lows, just do your best to stay on top of your responsibilities and remain hopeful. Breathe. Always breathe. You'll get better in time.