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NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   Reflex sympathetic dystrophy. A new manifestation of Lyme disease? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/78817-reflex-sympathetic-dystrophy-manifestation-lyme-disease.html)

buckwheat 02-24-2009 12:43 PM
Reflex sympathetic dystrophy. A new manifestation of Lyme disease?
 
http://www.ncbi.nlm.nih.gov/pubmed/2...ubmed_RVDocSum

Imahotep 02-26-2009 01:09 AM
Isn't lyme disease almost exclusively associated with deer ticks?

buckwheat 02-26-2009 01:29 AM
Quote:
Originally Posted by Imahotep (Post 471430)
Isn't lyme disease almost exclusively associated with deer ticks?
Dear Imahotep,

How are you? The scary thing is you can get tick-born diseases ( several types of infections) from any livestock, dogs, cats ( just a scratch) etc...

You can even get it from a flea bite. Much Love, Roz

buckwheat 02-27-2009 11:26 AM
http://www.youtube.com/watch?v=XdqSWJ8m4L0

Brooke Landau interviews Daryl Hall about Lyme Disease

Dubious 02-27-2009 09:12 PM
Quote:
Originally Posted by buckwheat (Post 472074)
http://www.youtube.com/watch?v=XdqSWJ8m4L0

Brooke Landau interviews Daryl Hall about Lyme Disease
Don't know about CRPS I; definately not type II!

buckwheat 02-27-2009 09:48 PM
Quote:
Originally Posted by Dubious (Post 472315)
Don't know about CRPS I; definately not type II!
Dublious my DX is type 2, by only 30 Neuros. Hugs, Roz

Abbie 02-27-2009 10:12 PM
I have been tested for Lyme's about 20 times... results have come back as negative every time....

I have RSD/CRPS type 1...

I think my doctors have ran every possible blood and urine test possible... they have biopsied more muscle and nerve than any person with RSD should ever have to endure..... I have had every CT scan, MRI, Doppler, Ultra Sound... I think every scanning device ever made.

I have run out of test that they can do... they have told me that at this point unless some new test pops up... we may never know the cause of my RSD... Full body now...

Just wanted to share my story...
:o
Abbie

buckwheat 02-27-2009 10:24 PM
Dear Everyone,

The problem with the test they are 50 to 70% inaccurate. I tested neg- as well, it's made by a clinical DX? You need to be seem by a LLMD if you think you could have this.


Much Love, Roz

Dubious 02-27-2009 11:20 PM
Quote:
Originally Posted by buckwheat (Post 472371)
Dear Everyone,

The problem with the test they are 50 to 70% inaccurate. I tested neg- as well, it's made by a clinical DX? You need to be seem by a LLMD if you think you could have this.


Much Love, Roz
Hi Roz,

I'll respectfully say this as nice as I can! I looked at the abstract that you supplied in your original post. It is a case report, which is about as low as you can reliably go in research methodology and still get printed. Further, the publication date is almost 20 years old! And there is no indication of whether this patient had type I or type II, but I suspect that by the way it was written, it was type I. As we all know, type II requires an identifiable nerve injury.

I know your heart is as good as gold, the only reason I even bring this up is so no one gets false hopes over this outdated case report! Love ya!

buckwheat 02-27-2009 11:22 PM
Quote:
Originally Posted by Dubious (Post 472398)
Hi Roz,

I'll respectfully say this as nice as I can! I looked at the abstract that you supplied in your original post. It is a case report, which is about as low as you can reliably go in research methodology and still get printed. Further, the publication date is almost 20 years old! And there is no indication of whether this patient had type I or type II, but I suspect that by the way it was written, it was type I. As we all know, type II requires an identifiable nerve injury.

I know your heart is as good as gold, the only reason I even bring this up is so no one gets false hopes over this outdated case report! Love ya!
Dear D,

I have type 2 my neurography shows nerve damage. But in my case the SX went way beyond the dermatones. Please if this doesn't apply to you, don't you think it could maybe help someone else out? Hugs, Roz


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