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NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   Welcome all new comers (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/79708-welcome-comers.html)

angelrsd 03-03-2009 10:00 PM

Welcome all new comers
 
hi i just wanted to welcome all the newcomers to the forum. glad to see you here and sorry that you have this monster. i know its been alittle slow around here lately just ask away.

carrie

DianaA 03-04-2009 12:17 AM

Quote:

Originally Posted by angelrsd (Post 474400)
hi i just wanted to welcome all the newcomers to the forum. glad to see you here and sorry that you have this monster. i know its been alittle slow around here lately just ask away.

carrie

Hi Carrie,
Although I am not a newcomer, and with my 20 year Anniversary of CRPS in July, .....I couldn't resist dropping in and saying "Hello" to you. I hope this post finds you well.
I think the welcome to newcomers is a great way to open the door for conversation. Take care Carrie and a cheerful welcome to any newcomers.
Di

angelrsd 03-04-2009 08:22 PM

thanks di
hope that all that are new are finding there way. hope to talk soon

carrie

dreambeliever128 03-04-2009 10:14 PM

Hi Girls,
 
I too am not a newcomer but I just wanted to say hi to both of you and to welcome the newcomers.

We all need help at one time or another so I am hoping we can help any of you in any way. Even the old timers.

Ada

info hungry 03-04-2009 10:42 PM

Thank y'all for welcoming. I have been looking back a little and researching. Thank you for being here!
debbie

angelrsd 03-04-2009 11:06 PM

hi debbie and welcome to the group
hope that we can answer any question for you or you can help us :winky:
carrie

rsdwife 03-06-2009 11:40 PM

new to community
 
My husband was involved in an accident in May of last year. His original diagnois was left shoulder/thoratic sprain and left wrist sprain. Since about September of last year, and 4 doctors later, his pain managment dr diagnosed CRPS. We are now at a stand still waiting for the workmans comp company to decide whether or not they will accept this condition. Today, his left had was so swollen and purple that his nails started to turn black. He went into the ER, where they gave him a shot of some strong meds and doing an ultra sound to ensure there were no blood clots and sent him on his way. The ER doctor had to look up CRPS to see what it was all about. After being home and laying back in the recliner with his hand over his head, he his fingernails were no longer black, the swealing and purple color is always there however. Our lawyer is trying everything he can to try and get this approved so my husband can have a spinal cord stimulator trial. If he has to try and control pain with meds (which do not give him much relief) he will no longer be able to drive for a living since he will loose his cdl. We are still having a hard to accepting how diabling this is. I have read over this board for many months, but just now feel like I can post our story... it's nice to know we are not alone...

dreambeliever128 03-07-2009 02:17 PM

Hi RSDwife,
 
Welcome to the group.

Sorry to hear about your husband. WC is always a time consuming way of getting treatment unfortunetly.

Very few Drs. seem to know about RSD so it is a hard one to get the help for but they are out there. Hopefully he will get the help he needs soon.

Ada

angelrsd 03-08-2009 02:15 PM

rsdwife
i am so sorry that your husband has RSD. like ada alot of docs have no clue about rsd and treat us like we are crazy or worse. i really hope that you are able to get the attorny to get the approval for SCS, i have the horrible color changes and raising that limb seems to help it be not so black. but i dont have the huge out of porportin swelling like most mine is only a little bit of swelling compared to must. i have had rsd for 11yrs and it is full body and internal. i really hope that they can get this under control.
has your husand had anyblocks or any other treatments for his rsd


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