Neuropathy Centers
 

The Neuropathy Association has 12 affiliated University Neuropathy Centers at places like USC, Columbia, etc. Have any of you ever gone to one of these? I was in to see my primary care physician today and he said that I ought to try one, since my symptoms keep getting worse. I'd sure like first-hand information about these (or the Mayo Clinic, etc). Thanks!

I go to the Neurology Dept., Outpatient Center, at Johns Hopkins -in Baltimore.
I recommend it highly.

I'm in the process of getting a referral to the one at UCSF. It'll probably be another 1.5 or 2 months to get there, but will report back once I do.

I cannot make any good recommendation to the Mayo Clinic. Had the best treatment from the Barrows Neurological Institute here in Arizona.

Bob, Why did you choose Johns Hopkins? Is it because of its proximity to home or for its area of specialization? They are known for work with people who have had vasculitis,as I have, so I'm particularly interested. Thanks.

Both.
I wanted to be treated by the best, and by a facility that was nearby.
I live in Baltimore City, not very far from Hopkins, but I wanted
up to date and experimental therapies available at a facility
that does research .
I did not want an individual, practicing neuro,
that was not 'in the loop' for latest info.
I also wanted testing available without middle men.
If I'd lived in NYC, I'd have gone to Cornell-Weill,
or towards the middle of the country, Jack Miller Center.
The Mayo Clinic does not seem to be a #1 choice
from reports that I've seen.
But, any port in a storm.
I'd think any major teaching hospital with a medical school or university-that does research in neurological disorders -would suffice.

Mayo? Not so good...
 

The Mayo Clinic in MN is close to where I grew up and they have treated many family members with great success. However, PN and/or Pain Mgmt. does not seem to be one of their strong suits. A friend with PN and spinal cord injuries did not have a good experience at Mayo diagnostically or with his treatment. Over the years I have read several reports that have basically said the same.

For anyone in the West or Mountain states, I made a special trip to the University of Utah and can say that the Neurological Center there did absolutely nothing for me.

Happy Friday,
Doxie

Augie -

I go to Johns Hopkins as Nide44 does. I agree with Bob, highly recommmended.