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-   -   Okay Erin, what's the word (https://www.neurotalk.org/myasthenia-gravis/80611-okay-erin-whats-word.html)

nemsmom 03-09-2009 10:41 PM

Okay Erin, what's the word
 
Hey girl,

Just wondering what the doc said today.

Do they have any answers? How are you feeling?

Inquiring minds want to know. Please let me know soon.


Kristie

erinhermes 03-10-2009 12:03 PM

Hey Kristie!
 
Welllllll.........the grey "spots" are gone now, but I do have a 6 mm area on my lung - AUGH!!!!!!

My pulm thinks the areas that were there b/4 were due to an infection, but wants to keep an eye in the new "area" - follow up in 6 months....

I did ask him if he thought of any autoimmune disease in particular and he said nope - of course not!:(

Sooooooooooooooooooo - it's another "hurry up and wait" thing........but I am so glad that the old spots are gone!:D

I see Dr. I on Monday so I'm gonna ask him what he thinks...........

How are you? Are you OK?

:hug:Erin:hug:


nemsmom 03-10-2009 01:18 PM

Okay
 
Don't you hate the hurry up and wait answer?

It's good that the other spots are gone now.

Let me know what Dr. I says.

I'm okay, trying to figure out how I'm going to get the supplies to make a special cake in a week and a half. I have to get the topper made real soon. Oh well, I guess I will figure it out.

How are you feeling today?

Kristie


Quote:

Originally Posted by erinhermes (Post 478733)
Welllllll.........the grey "spots" are gone now, but I do have a 6 mm area on my lung - AUGH!!!!!!

My pulm thinks the areas that were there b/4 were due to an infection, but wants to keep an eye in the new "area" - follow up in 6 months....

I did ask him if he thought of any autoimmune disease in particular and he said nope - of course not!:(

Sooooooooooooooooooo - it's another "hurry up and wait" thing........but I am so glad that the old spots are gone!:D

I see Dr. I on Monday so I'm gonna ask him what he thinks...........

How are you? Are you OK?

:hug:Erin:hug:



erinhermes 03-10-2009 01:24 PM

More than anything!
 
Yes I do! More than anything! It's the "unknown" that really scares me.....I guess most people are that way, but I am a super OCD/control freak......can't be that way anymore - darn disease won't let me! LOL That is one good thing about MG (for me @ least):D

Lazy day today! I am just plain tired. I have stayed on the sofa all day and feel guilty about it, but need to do it every now and then......

My mom is here and she is hyper! Keeps asking me to sew or do other things - I told her I was going to put a xanax in her tea! LOL

So, you are making another one of your beautiful cakes - what's the occasion? Are you going to post it? Did you go to a special class to learn? I would love to do that, but my stuff always looks so darn ugly!

Can't wait to hear from you!

Big, big hugs!
Erin:D
Quote:

Originally Posted by nemsmom (Post 478779)
Don't you hate the hurry up and wait answer?

It's good that the other spots are gone now.

Let me know what Dr. I says.

I'm okay, trying to figure out how I'm going to get the supplies to make a special cake in a week and a half. I have to get the topper made real soon. Oh well, I guess I will figure it out.

How are you feeling today?

Kristie


nemsmom 03-10-2009 03:37 PM

No classes
 
Just looked on line for recipes and tips and went from there. The cake is for my neighbor's daughter's 13 birthday. Her and a friend are having an open to the public dance party at a local hall.

She is a big nature lover so it will be a forest dance theme. I have to make the dance floor and two people for the topper and some trees. I guess I should get started.

I will definitely post pictures, but I'm not making it until the end of next week. Her party is a week from Saturday. So I need to get the toppers done by the end of this weekend since I will be gone for three days next week.

I need a couch day too. But it will have to wait.

Have your Mom go for a walk or do something she enjoys by herself for a little while so you can take a nap. Maybe that will give you enough energy to do something small with her. Then you both would feel a little better. Or just tell her you can't, but that doesn't mean she can't. I hope you feel better.

Kristie

P.S. I think it took me four times of typing it to spell my name right, woops my fingers don't want to listen to my brain today, I hate that.

Quote:

Originally Posted by erinhermes (Post 478783)
Yes I do! More than anything! It's the "unknown" that really scares me.....I guess most people are that way, but I am a super OCD/control freak......can't be that way anymore - darn disease won't let me! LOL That is one good thing about MG (for me @ least):D

Lazy day today! I am just plain tired. I have stayed on the sofa all day and feel guilty about it, but need to do it every now and then......

My mom is here and she is hyper! Keeps asking me to sew or do other things - I told her I was going to put a xanax in her tea! LOL

So, you are making another one of your beautiful cakes - what's the occasion? Are you going to post it? Did you go to a special class to learn? I would love to do that, but my stuff always looks so darn ugly!

Can't wait to hear from you!

Big, big hugs!
Erin:D



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