New here, really struggling
 

brief intro:
My daughter is 19 months old. I took her to a neurologist at 8 months old because she would not sit without support. He referred her to PT/OT. She has been doing both since 8 months old. Couldn't sit well unsupported until 10 months, no crawling until 17 months. Finally pulled to stand at 19 months with minimal "cruising" ability. Has low tone in trunk and lower extremities. She can use her medical walker with a lot of encouragement and assistance, but it is very difficult for her as her legs are quite weak. She has been seeing a physiatrist at Rehab Inst. of Chicago, who encourages us that at worst, she has mild CP with hypotonic features. We went back to the neuro Monday because she didn't pass the autism questionnaire given to her at her 18 mo. checkup. Neuro says, no autism, but he doesn't like how weak her proximal muscles are (i.e. hips, buttocks, lower trunk) so she had blood work today --CBC CMP CPK muscle aldolan (sp?). and Tomorrow she has an EMG of her legs.

?????'s::: What do I expect at this EMG tomorrow, and does anyone have any insight into what he's looking for? I am an RN, but quite bewildered by all this, since it's my child, and not a patient or someone else's child, if you know what I mean. I really have dismissed in my mind that she has DMD or any type of MD, but maybe I am dismissing all that too early? Help!
thanks,
Kathy

hello Kathy
I dont have answers to your questions, but I did want to say hi and welcome you to NeuroTalk

hopefully others with experience in these areas of concern will be able to provide some insight for you

I have a son with Tourette Syndrome so I sure understand your concerns...it is so hard when we realize something may be "wrong"...I do hope all will be well with your precious little one

http://i489.photobucket.com/albums/r...mmersWTTG5.gif

Hi Kathy, and welcome to NeuroTalk! I'm sorry that I can't answer any of your questions, but I do understand your concerns. :hug: If you ever just need to talk, please feel free to PM me.

Take some time to look around NT at the different forums. You will find that there are a lot of caring and friendly people here. :)

Welcome, i have a son with problems very much like yours. i have yet to find someone who can tell me why he can't walk. he is behind in many areas but real nice and caring. does your child have a small cerebellum like mine? i hope everything works out, new york is no help.:grouphug:

Welcome to you

And also to Brennan

I'm Donna, and I also am no help.

Just wanted to say hi.

Donna