NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   Hello dear friends (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/83266-hello-dear-friends.html)

flippnout 04-04-2009 06:11 PM

Hello dear friends
 
Hey I wrote allot for today answered some people and well feel out of it but do want to say hello! I'm alone still not many to talk to my family understand but they can only take so much of it I think they think they are lucky not to have our CRPS (RSD). They get books on learning to live with pain have a library of them now LOL well hello wish you all a pain free day soon to be my 4 year RSD birthday
Nice to meet you new people sorry I do read allot do not post much hugs to you all!

CZZ74 04-05-2009 06:14 AM

Hi Thanks for posting
 
Hi Flipout, thanks for posting. It funny you mention the library- my family to has that, but I do beliivie a few of my family menbers have not read it!lol.
anyway, Sorry to hear you are at year 4 of your RSD. I am approaching year 6 I cant belivie it.
Well I just wanted to say hello -hang in there, I know how depressing these RSD birthdays can be- get on here and vent if you need too. Youre certainly not alone. Take care, CZ

daniella 04-05-2009 11:31 AM

Hi. I am sorry you feel alone. I can relate. If you need or just want a buddy I am an email away. I know my mom she reads everything about my conditions and possible treatments and outcomes. Now my other family members they have no idea and just state what they feel I should be doing or am doing wrong. The other day one after telling me what I should do for rehab asked me what I suffer from. I try to use my voice and educate but for some they will remain clueless. I try to focus on the people who do care. Sending thoughts

medictlc 04-05-2009 11:51 PM

We have started "collecting" books also. Jeff's mom has read them but no one else in the family is interested. We also have family members who are clueless but want to give advice. Such a small world.


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