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New, old, retired & really tired! MG!
Hi all, a little history, am a retired veterinarian (goin' on 3 yrs), have been in Tn for that am't of time, & finally have found what has been stalking me for a very long time....fatigue syndrome never quite explained it all, but when I moved here from NJ in '06 I literally fell apart & landed in the ER twice with an excruciating headache & prostration; after morphine & sev'l weeks in bed, managed to get back up & resume living....however, no dx ever found for that one & proceeded to get weaker & weaker & developed severe exertional dypsnea (difficult, shortness of breath, one Dr claimed I was in heart failure, not so).... there is still no way to associate that illness (possibly viral?) with my eventual dx of MG (2wks ago); confirmed with a decremental EMG...AB results pending; because of the dypsnea time was spent on cardiac & pulmonary testing of which all was normal, (repeated the scenario that you all know too well for past 2 yrs)... now, in addition to the weakness & breathing problems, my jaws ache & feel weak, but I did not present with the classical facial & ocular signs which I'm sure impeded the final neuro evaluation....
After searching this & other forums, it is evident that symptomology varies greatly from person to person, but also from time to time in each of us with remissions...haven't yet been able to assess the effects of pyridostigmine br...taking the 180mg timespan twice a day, may be helping some.....(for some unknown reason, earlier, the administration of a long-acting steroid injection made me considerably worse within 48 hrs)....can only hope that something will eventually tone this down or result in a remission....I sure would give anything to get "back in that saddle", 3 horses & I can't ride yet, or work with my 2 dogs..(dobermans) the elder is an agility champ, but I cannot walk long enough to train the young one.... Sorry for the long post...takes much explanation, & I do realize that there are many of you out there who are in worse straits than I & a lot younger....I'm just trying hard not to give up..never was a quitter.... Dottie |
Hi, Dottie, and welcome to the neighborhood! I hope you found the forum specific to MG here...I haven't figured out yet how to post the link for you, but someone will! Feel free to jump in anywhere, though. You'll find lots of support here, and there's always somebody home when you want to talk.
You sure don't sound like a quitter to me; guess that's why you're here! Maybe you'll post a couple of pictures of your horses and dogs? Blessings to you! |
P.S. I like your thread title! :D
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Hi Dottie and welcome to Neuro Talk...here is the link to our MG forum..
http://neurotalk.psychcentral.com/forum77.html I know you'll be glad you joined us...great place for support and information. :hug: |
:)
And a big HOWDY from KY, neighbor. You are welcome here. No post is too long for me. I'm so sorry you're not in the saddle. It does hurt.... a lot... :hug: Take it one day at a time. You'll figure things out as you go along. Don't be afraid to ask questions here. We're here to listen and offer support and suggestions that may help. :hug: |
http://i489.photobucket.com/albums/r...s/59dbe1eb.gif
Hi Dottie, and welcome to NeuroTalk! :Wave-Hello: As you can see there are lots of forums with all different topics, and bunches of friendly and helpful people here. :) It's such a great place to hang out. Hope to run into you once in awhile. :) |
:welcome_sign: Hi Dottie and welcome to NeuroTalk!! I hope you can find some answers to your questions on the MG forum. Take a look around and join in anywhere you feel comfortable. There's lots of very caring, supportive and friendly people here. I'm glad you've joined the group! :)
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Thanx all for the welcome!
Hi everyone & thanx, good to know so many out there really care...can be a difficult & lonely trail to walk when no one wants to believe we really are hurting.....I'm very fortunate to have good friends here in Tn who help me in times of need...
Blesssings, I did find the MG forum, & I would love to add pics of my critters; & Alffe, thanks for the link; BrokenWs, Ky has a special place in my memories, my friends & I showed horses at the Arabian Nat'ls in Louisville for many yrs, & enjoyed the horse pk in Lex;...Az & Kitty thanks for the support..... Dottie :hug: |
Dottie,
Welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help. We are all here to assist each other as possible. Again welcome, looking forward to seeing you around. Darlene:hug: |
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