Head Injury and CSF Leak - Info and help PLEASE
 

Hello everyone - My daughter was in a car accident almost 5 years ago. Four years ago, after many visits to doctors, she was finally diagnosed with a mild to moderate tbi. We have spent these past years doing whatever needed to be done. At this point, we are dealing with many, many endocrine issues as a result of the tbi. She has mentioned to most of the doctors she has seen about this fluid that comes from her ear. It used to be more red/clear and now it is pink/clear. She has also asked almost from the very beginning about this "crackling noise" that she feels is coming from the back of her head. Has anyone hear heard that noise? Has anyone here had the ear leak? We were told to see a neuro-ent. Waste of time, he prescribed flonase and told her that csf was only nose. Also, if anyone knows of a doctor WHO WILL LISTEN in the New York, Connecticut, Massachusetts area I would most definately appreciate the help.

Hi again

I moved your post out from the other thread in hope it would be more noticed

here is also the link to our TBI forum which is a very active one. hopefully members there will have answers for you
http://neurotalk.psychcentral.com/forum92.html

this doctor
 

this doctor will help you


Wouter.Schievink@cshs.org top man for leaks in the US

his sectary is Penney Kornbluth

ph direct LA 3104230840

office 3104237900

hospital cedars sinai LA

he will review notes and scans ect if she is leaking he will find it I am in the UK but can recommend him

kind regards vini

I know many that have made the trip we have lists of cheap accommodation ect close to the hospital it may be worth the trip