NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Multiple Sclerosis (https://www.neurotalk.org/multiple-sclerosis/)
-   -   ? nystagmus and peripheral vestibular lesion?? (https://www.neurotalk.org/multiple-sclerosis/83929-nystagmus-peripheral-vestibular-lesion.html)

sabimax 04-10-2009 11:29 PM

? nystagmus and peripheral vestibular lesion??
 
So in testing, lets say...in a electronystagmography evaluation

if it is listed, during positional testing, the patient had a left beating nystagmus in the head left position with eyes closed. This is suggestive but not diagnostic of a peripheral vestibular lesion.

does that mean like lesion like lesions we always talk about with MS????

Just curious, I was digging thru my papers from back when...heck this one is from 2007, and read that, that the findings are normal, but when you read it it has that in it...

I did share all my paperwork with the newest neuro, so guess since clear MRI, head ones, he is still trying to figure me out.

just curious, after rereading this, hugss,sarah

mrsD 04-11-2009 08:18 AM

I wonder about this test.

When I was in my twenties, I had severe vertigo attacks.
I also had dizziness at work. (which at the time was thought to be due to the sonar burglar alarms that were left on during the day there.)

So I had that test then. Spinning in the chair, and also the
blowing air in the ear, with the electrodes on my skull.

The dizziness was centered on my left ear. And the test showed poor response to the test on the left side. The report said I should have been deaf in that ear, and while I have some hearing loss there, I certainly am NOT deaf in that ear at all. I had a very low reading from the electrical leads.

So I wonder how good that test really is. Also after I was given thyroid hormone to normalize my long standing low thyroid, some of that hearing in the ear did improve, but not 100%.

Since then I have had 3 other vertigo attacks that put me in bed over the past 30 yrs. All centered on that side. The last one was triggered by a drug...metformin...that caused some acidosis for me, so I had to discontinue it.

The doctor said I might have some weird damage to that nerve from a blow to the head (abusive childhood) or from the measles or another virus like herpes zoster which I had when young. He thought the nerve could wake up some --be stimulated in some way and cause the vertigo. I have had a couple of severe ear infections on that side too over the years. This is because the brain accommodates to the loss of sensation and then if the nerve wakes up, there is the inability to function until a NEW accommodation occurs. I cannot for example stand up straight with my eyes closed. I can't orient under water, or take showers safely without falling.
But I don't have MS.

So like you my test was not predictive of very much!

sabimax 04-11-2009 09:01 AM

yes exactly, I actually passed most those tests,and was given normal results. Meaning they did not think ears cause my balance and vertigo issues. Is what I was told. So who knows, I just was up late after work rereading stuff lol

Plus after Monday episode of vertigo, vomitting, and lost mind for two days, I just do not want that feeling HATE it!! Does not happen often, but still a bit off centered and once in while feel the numb face/blur eye stuff... and that is what I felt right before mondays episode. So hoping it wont come back!! Hate dizzies..not that many like them haha

hugssss,sarah


All times are GMT -5. The time now is 07:01 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.