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dorm7guard 04-12-2009 06:28 AM

Has anyone ever heard of someone having slight cerebral palsy along with
 
Has anyone ever heard of a person having slight cerebral palsy along with being a slightly autistic adult? Upon growing up, this person has improved along the way a great deal, but still finds spasms in stomach (colon) that never goes away ) and has the feeling many times of exhaustion through the legs. If they have a hard day, the legs are the first to go , even though the problem was a great mental strain. Also upon growing up, this person was very shy (if that is what one could call it....their face would always be so red, and would really only communicate ("normally" ) to their family. In High School, this person was not smart but not dumb at all; has a good memory.
In school, this person was never given the opportunity to learn a foreign language. ....possibly the teachers or whoever was in charge felt that this person had enough to deal with , with the American language. I am inquiring if anyone knows of people in this situation? Any help or input, sure would be appreciated.
Dorm7guard

Beverley 02-06-2012 04:48 PM

I am posting to you becase I was originally diagnosed with "Mild Cerebral Palsy" as a child. I was born premature weighing 2lb 10oz 48 years ago.

My only symptoms really as a child were that I was basically uncoordinated, walked with a wider gait, walked on my toes, my left leg was weaker than my right over all my left side was weaker than my right. But basically as a grew I could do most of the thing everyone else could, riding a bike, swimming, bowling, etc.. I was just less coordinated and had a harding time with my muscles doing what they should do.

At the age of 42 the CP diagnosis was taken away due to an MRI that showed no brain damage that was assumed all those years earlier. It is now determined that I have a condition call Dopa Responsive Dystoina (DRD).

DRD can mimic many of the CP symptoms. DRD typically presents as a dystonic gait disorder that begins in early childhood. The symptoms of DRD may be similar to those of early-onset generalized dystonia, and begin in the legs. Symptoms may appear minor (such as muscle cramps after exercise) or present later in life in a form that more closely resembles Parkinson�s disease. The features of parkinsonism that may occur include slowness of movements, instability or lack of balance, and, less commonly, tremor of the hands at rest. Symptoms of DRD are often worse later in the day (this phenomenon is called diurnal fluctuation and may increase with exertion.

DRD can be controlled with taking medications like Sinemet that are used for Parkinson's Disease. DRD is not Parkinsons but Domamine is the treatment most commonly used for DRD. You would need to find a Very Good Movement Disorder Specialist (MDS) Neurologist that specializes in Movement Disorders. DRD is very rare so you may have to look for a Doctor that has knowledge and has treated patients with DRD.

I hope this helps.

Beverley

olim2005 03-08-2013 09:23 AM

CP test never finished as kid
 
I am kind of lost with my issues. I was an emergency birth where the placenta wrapped around placed me in an emergency delivery state. I didn't walk right away, I was late. And slept with my butt in the air. Instead of crawling I hitched on my butt. My parents started the CP tests and had a pre-diagnosis of CP. Then I started walking and the stopped the tests, so I don't know for sure.

I was put in special classes as a kid for the first few years of grade school. I showed signs of slow development, but I seem fine now. As a kid I also had bad back pain and found that my pelvis couldn't rotate like others.

I dont walk funny and I am an athlete. The only things wrong with me is a tremor and sometimes I loose coordination suddenly. I also have bad deep aches and I am wondering if I have fibromylagia. Even certain clothes can trigger the worse pain.

Does anyone experience something like this?

ermintrude 06-24-2013 09:24 PM

Quote:

Originally Posted by dorm7guard (Post 494656)
Has anyone ever heard of a person having slight cerebral palsy along with being a slightly autistic adult? Upon growing up, this person has improved along the way a great deal, but still finds spasms in stomach (colon) that never goes away ) and has the feeling many times of exhaustion through the legs. If they have a hard day, the legs are the first to go , even though the problem was a great mental strain. Also upon growing up, this person was very shy (if that is what one could call it....their face would always be so red, and would really only communicate ("normally" ) to their family. In High School, this person was not smart but not dumb at all; has a good memory.
In school, this person was never given the opportunity to learn a foreign language. ....possibly the teachers or whoever was in charge felt that this person had enough to deal with , with the American language. I am inquiring if anyone knows of people in this situation? Any help or input, sure would be appreciated.
Dorm7guard

Your friend's story sounds very similar to mine. I have mild hemiparietal CP (my right hand is next to useless and my left is...not meant to be the dominant hand) and mild autism. My physiatrist said that sometimes CP or just low birth weight in general can cause other problems to surface.


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