NeuroTalk Support Groups - I feel FaNtAsTiC yayy to IVIg

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mm80	04-20-2009 05:40 AM

I feel FaNtAsTiC yayy to IVIg

Hi ppl,

Well it seems like the IVIg thing is helping cause I have not felt this good in agessss, I dont have that exhaustion I had last week, sure I get tired at the end of the day, but it feels like normal tirdness after busy day, I have energy to do things I feel ALIVE yayyyyy not sure how long this will last but im definatly going to enjoy it.

Hope everyone else is doing good.

Have a great day / night

korbi_doc

04-20-2009 07:40 AM

Happy for you!!

Good for you mm80, so good to read that the IVIG has resulted in a positive response for you....hope it lasts a long time...keep us updated & enjoy every minute.....

Dottie

rezmommy

04-20-2009 12:37 PM

Yeah, I think of IVIG as "stamina in a bottle" , works wonders.

Maxwell'sMom

04-20-2009 01:18 PM

:hug: doing happy dance for you...okay, in my head, I'm doing the happy dance, and you should see how great I am...dancing with the stars, here I come...:D
I really love reading these kinds of posts..soooo happy for you!!!
I've never done any illegal drugs, but used to say that "tensilon" would be my drug of choice..if it wasn't for that little itty bitty problem of it being able to kill me...:rolleyes
Love Lizzie:

erinhermes

04-20-2009 01:45 PM

Holle mm80!

IV IG is the stuff of legend! "Go go" juice! Liquid gold!

Doesn't it feel GREAT to FEEL great? Stupid question, but I think most of us don't realize just how awful we feel until we've had something like that to "perk us up"!!!!!!!!

I am sooooooooooooooooo happy for you! How often are you going to get the IV IG? How many mLs? Do you have a PICC line in place?

You know, a lot of neuro's still won't recommend it, b/c they still consider it too "experimental" - all I know is that it TRULY saved my life!

Keep up the GREAT feeling and happy posts!

Big, big hugs!
Erin:D

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ras1256

04-20-2009 04:12 PM

Congratulations! Funny how we don't know just how bad we were until we're good again sometimes, huh! Thank you so much for this post. It is so good to hear someone doing so well! I hope it lasts a long, long, long time for you!

redtail

04-20-2009 09:39 PM

So glad you are able to post the good news of how your ivig helped you!!!!

Its is great stuff, and wouldn't it be great to be able to have that feeling
all the time?? Ahh well I can hang out for my yearly or so dose.

erinhermes

04-21-2009 06:43 PM

Just wanted to see how you are doing.....

Just checking in to see how you are - has the IV IG given you tons more energy? Are you making sure to drink plenty of fluids? Does your neuro have you on a plan to keep this up for a while?

If so, you MAY want to have a PICC line put in - less fuss and muss.........

Tkae care!
Erin:hug:

Quote:

Originally Posted by mm80 (Post 498546)

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