NeuroTalk Support Groups - What is rebooting & just what does it involve?

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- - What is rebooting & just what does it involve? (https://www.neurotalk.org/myasthenia-gravis/86153-rebooting-involve.html)

What is rebooting & just what does it involve?

I was Googling the other day & came across a site about "rebooting" for MG. Has anybody tried this? If you have, what does it involve and does it work?

Jenna

Here's an abstract from a paper done by researchers who have done the procedure:

Quote:

Patients with myasthenia gravis (MG) who do not respond to conventional immunotherapeutic agents, or cannot tolerate their side effects, are considered "refractory." Ablation of the immune system followed by bone marrow transplant has been shown to cure experimental MG in rats. It is now known that immunoablative treatment with high-dose cyclophosphamide does not damage hematopoietic "stem cells," permitting repopulation of the immune system without bone marrow transplant. Recent evidence indicates that this treatment can induce durable remissions in autoimmune diseases. We treated three myasthenic patients, for whom treatment with thymectomy, plasmapheresis, and conventional immunotherapeutic agents failed, by using high-dose cyclophosphamide (50mg/kg/day intravenously for 4 days) followed by granulocyte colony stimulating factor. All three patients tolerated the treatment well and have had marked improvement in myasthenic weakness, permitting reduction of immunosuppressive medication to minimal levels. Acetylcholine receptor (AChR) antibody levels decreased in two AChR antibody-positive patients, and anti-MuSK antibody levels decreased in one "AChR antibody-negative" patient. The patients have been followed for up to 3.5 years, with no recurrence of symptoms. High-dose cyclophosphamide treatment appears to be an effective and safe treatment for selected patients with refractory MG. Further follow-up of these and additional patients will be needed to determine whether the benefit is durable.

Lots of gobbledy gook but it looks like it is not for everyone.

My Neuro doctor tells me my immune system needs a reboot, when he is refering to my IVIG, it gives you all new healthy cells, gets rid of the old damaged ones.
Mary

IG is kinda like plasma exchange though isn't it? It is a clean out, not a reboot?

In computer terms, a reboot is a complete restart - refreshing all memory (RAM) and clearing all of the crap out. A clean out (plasma exchange) would be like manually going through and deleting all of the temporary files that are floating around. Both are beneficial, but they do different things.

Brian.

Quote:

Originally Posted by maryec (Post 505140)

My Neuro doctor tells me my immune system needs a reboot, when he is refering to my IVIG, it gives you all new healthy cells, gets rid of the old damaged ones.
Mary

http://www.longevitymeme.org/news/view_news_item.cfm?news_id=3077

http://www.medicalnewstoday.com/articles/64250.php
http://www.futurepundit.com/archives/005922.html
http://www.medicinenet.com/cyclophos...tract/18567882
Here are some sights that might help you. We were just talking about this in our yahoo group.
It does sound promising. I wouldn't mind trying it.
Love Lizzie

Thank you all for the information!

This rebooting is something I'm really going to research and seriously consider.

My two children are just starting elementary school this year and I have to consider all of my options. If I am going to have to go away for this treatment for any amount of time, I'd prefer to do it when they are both a little older and in school all day.

Jenna

[FONT="Comic Sans Jenna, I wish I could be rebooted from head to toe. Actually I sometimes wish there was a body part dealer, like cars, we could go in, and say, hey, I need a new immune system, new lungs...new kidneys..etc. It would make things so much easier.
But this rebooting thing, sounds very promising.
Hope it works well.
Love LizzieMS"][/FONT]

It does sound like a GREAT idea!

I need to print this up and show it to my neuro------I wonder why more people haven't heard of it......

Thank you!
Erin:hug: