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Done with my monthly IV IG! YAY!
Hello all! Just finished with my monthly IV IG - next month should be the last one for a while:D!
My neuro also reduced my pred to 30 - so hopefully I will be a little less "puffy" and be able to lose some weight. On the positive side, my DH bought me a whole new wardrobe - see? There is some good to come out of all of this! All of my blood work came back GREAT - I guess all of those supplements are really doing there stuff! My neuro did reduce my IV IG to 150 mL an hour - down from 360, just in case - doesn't want me to have kidney damage! I just laughed! I am a walking pharmacy as it is!:D Also got the results back from my MRI - bulging discs are the culprit - who knew they could hurt that much? He scheduled physical therapy for me, but until then I am going to take Becky's advise and ice down and then heat my back and take my pain meds............I refuse to be in pain in addition to everything else. I was able to go shopping last night for gift bags for all of my nurses. They have been so kind and loving to me! I am going to try and get disability - met a really sweet girl with Lupus who receives it and it has really helped her out.......she has a great lawyer! I also have an appt with an oral surgeon on the 19th to discuss implants. Great day, but boy am I tired! I am going to help my hubby with his radio show 2morrow and then be a BUM all weekend! It is going to be GREAT! Take care! Erin:D:hug::hug: |
Great that your ivig went well, and your pred is being reduced!!!!
take care Kate |
Yee Haw, Erin. Only one more IVIG treatment, huh? I'll bet that'll be a relief.
As for the bulging discs? Just another reason to veg! Hope the ice and heat work for you. Once you get them calmed down from this injury, if you ever feel the "twinge" again, get ice on it right away! I finally learned that, and it can make it better within one day if you catch it early that way. I remember when I was on handsful of drugs - I had a night time pill box, a morning pill box (different color) then a noon time pill box - all loaded to the point I could barely close their lids! I was never even good at taking vitamins except when pregnant, so that was my big goal - to get the meds reduced. I did get down to just a couple of supplements for a year, so chin up - you'll get there too! Enjoy your weekend - sounds great! Love to you! Becky |
Good news on the IVIG & Pred. I am so glad you mentioned Oral surgeon in your post ! I thought you were getting breast implants at first look ! LOL... I had to back up & read ! I had a good laugh though ! I hope the therapy helps, sometimes it does, sometimes it doesn't.
Mary |
A whole new wardrobe! Woohoo:circlelove:......that was sooo sweet. My husband brought home some beautiful roses and cooked steaks last night....I had a hard time cutting and chewing them...but they tasted awesome!!!!
I hope you get to feeling better now! Steph Quote:
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Thanks Redtail!
How are you? Are you feeling better? How is your mum? Auntie?
All of the kids are gone and it feels wonderful! I feel awful for saying so, but it is soooooo true! Big hugs! Erin:D Quote:
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Hey Steph!
Hey there! Great day today! It was hot, but I was able to get out of the house for a while and help my hubby! YAY!
We are so lucky to have such amazing husbands! What a blessing! Hope you are feeling great today! Big hugs! Erin:D Quote:
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Yes, good husbands are a blessing. He has been so patient with me...especially with all of this mess. God sent me a few wonderful angels to watch over me... (my mom and my husband)!:Girl(angel-flying):
Today is a much better day...looking forward to tomorrow...since so far this week...everyday has been better than the last....I will be glad when headache is completely gone! :Doh: Steph Quote:
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Hi Mary!
Hey girl! How are you today? I would LOVE to get implants - breast implants - but I do not think those are in the cards for me! LOL!
The only good thing about my weight gain is the fact that I DO have boobs for the first time in years!:D Now if only I could get rid of all of my chins and sideburns.........sexy!:D I pray that the therapy works.....I had no idea how painful bulging discs could be.......pain that shoots down my left leg and makes my left foot/side numb.........I hate just laying around, but after I've been up a while it just gets to be too much......sigh........ I hope you are feeling GREAT today! Big, big hugs! Erin:D Quote:
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HI Becky!
Hi Becky! It WILL be great to have my PICC line pulled and not have have to make my weekly trek to the hosp to get it flushed/cleaned. They are so good to me there, but I hope I don't see that place for a looooooooong time!:D
I am already feeling the effects of the IV IG -was able to go to my hubby's show yesterday and did some shopping - it felt great, but as usual I overdid it and am paying for it today......It is just so hard to try and rest when I feel so good. I've already been chewed out by my neuro and will do my best....Lord knows I don't want to be back @ the Methodist! It is so funny b/c I am so used to having my line that when I'm out in public and people stare I think "Dang, I must be looking gooooood today" until I realize that they are looking @ my line - not me! I laughed when I realized what they were staring @! I cannot wait to be in remission and take less pills! It will be awesome! I just know it will happen! My neuro told me that people usually go into remission 1- 2 yrs after the thymus is removed - well, I've reached the 1 yr mark, so I a ready! My hubby was able to get us a cruise on barter to Alaska. I am excited, but am also very nervous! I am not used to being that far away from Dr. I........... To be honest I don't even know if I want to go..........I am scared. Does that makes me nuts? I mean I know I won;t get weak like I used to, but just the thought of getting that sick again makes me cry........... Big, big hugs! Erin:D Quote:
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