Fibro...Mrs. "D" conference posted 6/07
 

Mrs. "D"
As I am now exhausting all efforts to find out what is wrong with me...and everything comes back fine (as you can see by my numerous posts), I am now looking into Fibro. I read your information posted under sticky on the Fibro site. So many of my problems seem to fit so many different places.
EVERYTHING begun after a MVA 5 years ago. Interesting too is that opiods dont seem to help me at all (though when I had oral surgery and major tooth ache they worked great for that...so obviously different types of pain caused by different things.) Sorry if I posted this on this site but I dont know where to go. Still feel I have neuropathy issues, alas. Hoping things do not continue to downward spiral.

Let's all remember how special today is...no matter how we feel we have so many fallen heroes!!!!!

I will be going to the conference again which is this Friday all day.

I will be sure to post any new things about Fibro. I expect some comments on Savella. Dr. Clauw is not giving the lecture this time.

In the meantime, you might want to try some acetyl carnitine.
This really helps my muscles when I overdo... exercise.

I've always had muscle issues, coming and going, but magnesium luckily has always helped me.
( I did alot of bending and cement/rock work yesterday, and pretreating with more mag and taking some yesterday really helped me).

Sorry, the conference didn't have much to offer PN or Fibro patients this time.

It dealt with chronic headache, estrogen links, spinal cord stimulators, some chronic pelvic pain issues. Two hours were taken up with politics this time. The drafter of the new Health/chronic pain bill that just passed the House, spoke along with another congressman (both from our area). The Fibro speaker was Russian, with a thick accent, very hard to follow him.
So nothing much new on Fibro, except the receptor stuff, which I will have to study from the handouts. Estrogen was stressed as a pain trigger, and this lecture covered dopamine/opiate receptors and oxytocin. Highly technical and theoretical. I wish Dr. Clauw had been there again.:rolleyes:

MrsD, I find it fascinating that the subject of estrogen as a pain trigger has been brought up and talked about. I feel this is so important. I know that my erractic estrogen cycles through menopause have caused me a great deal of more pain both with neuropathy and a pelvic pain condition. Would you happen to know if there is any reading material, or internet links on the subject of estrogen and pain? Thank you....

Most of what they discussed was menstrual migraine.

The studies show sudden dips in estrogen can trigger these migraines, in women with a genetic tendency. Not in ALL women.

But there are hormonal links to other pain states and receptors.
http://www.scientificblogging.com/ne...rogen_and_pain

This is the presenter who gave one portion of the lectures.
He is very smart, (and cute)....but his accent so thick as to
be incomprehensible. But I found this link and it sort of summarizes what he said.
http://www.med.umich.edu/opm/newspag.../painbrain.htm

Someone asked during the program about peri-menopause and post menopause, and the answer was "we don't know yet".

But I can tell you that nothing changed for me during my menopause. It was fairly easy, compared to what I have seen other women report. My major problem was sleep. The sleep cycles DO change... and that was a bummer. I found methylcobalamin helps with this, though.