NeuroTalk Support Groups - Another Round...

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Another Round...

...of IV steroids, starting today.

I saw my neuro last week. My tremors are pretty bad. He wants me to have a 3-day course of IV steroids, then wait two weeks. If the tremors haven't improved, then he wants to up the dose of my Klonopin. If that makes me too sleepy, then he will start me on something else for the tremors.

I'll tell you one thing, these durn tremors make life that much harder! :(

Oh well, maybe the 'roids will do the trick! Gotta think positive. Yep! :)

I hope that does the trick, MaryAnn! :hug:

no advice, just hugs. :hug:

Good luck (((((((((((Mary Ann))))))))))))

So sorry to hear that things have been so rough for you lately and that you are dealing with the awful tremors/spasms!!:hug:

I really hope that the 'roids help you and that you don't need to go down the route of trying different meds.

You're in my thoughts and please keep us posted when you are able to!

Thanks, everybody!

Day One down, two to go.

Small world, but the woman sitting in the chair next to me, also getting steroids, was a friend from my MS Yoga class. :)

Sorry about the steroids, but hopefully they'll do the trick. I have terrible tremors too, so I totally understand how hard they make everything. Klonopin helps a little, but nothing so far has gotten rid of them, and they make me feel pretty self-conscious, especially when the tremors make my head shake!

I've been practicing yoga since I was a kid (eccentric awesome grandma) and I love it. It hasn't helped with symptoms per se, but it helps a lot with my mental, emotional and spiritual well-being. How have your experiences been with it so far? I've been thinking of going to a class--there's a local lady who teaches it here who has several MS patients. I'm wondering if I'll benefit from a class after doing it myself for almost my whole life. I guess a new teacher would offer me something new though.

I hope you have lots of good candy around to suck on! :)

Quote:

Originally Posted by april1848 (Post 517754)

My neuro seemed a little doubtful about the steroids helping the tremors. He said maybe a little. But, my balance has been bad and my arms and legs have been weaker, so maybe this will help at least one of these problems.

I love my Yoga class. My teacher worked with Yoga teachers who had MS before she began this class a few years ago. Caryl is 70, looks 50, and moves like she's 30. She's practiced Yoga for 50 years, and has taught classes for 20 years.

Most of the people in my class have MS, to varying degrees. One is in a power chair and stays in the chair, doing whatever she can with the exercises. Some use walkers, some forearm crutches, and some canes.

I use a forearm crutch on my right and Montana on my left. He also helps me get up off the floor after the relaxation portion. During relaxation he lays real close to me with his head over my abdomen, breathes deeply and doesn't move until I'm ready to get up. I think he enjoys it as much or more than me!

During some of the exercises, some of the people stand behind their chairs for the stork (?) pose. I always remain seated during this, and do as much as I can with that position. With the tremors and my balance, I'm just too shaky to stand during Yoga exercises.

I leave there feeling so relaxed, happy, looser, and just mentally good. That is what I get out of the classes. :)

Hope they can help you out with this. Tremors are never fun. :(

Agree about yoga. Love it.

Feel better soon. :hug::hug:

I just got a call from the infusion center. The infusion nurse fell and hurt her ankle. I've had to re-schedule my last two infusions for next Monday and Tuesday.

This is strange, but can't be helped. I hope they still work a week apart!

Has anyone had this happen to them? What did you do? Thanks! :)