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Looking for Info on Myoclonus
My son has been diagnosed with Myoclonus at UCLA. It is still undetermined which one, should find out next month. I am new at this and do not know what to expect. I could use any info or advice possible.
Thank you |
Hi there Memphis, and welcome to NeuroTalk.
I did a quick search for you, for posts made about myoclonus here on NT and here's what I came up with: http://neurotalk.psychcentral.com/se...uery=Myoclonus |
Hello Memphis and Welcome to Neurotalk!
I'm sorry to hear about everything that your son is dealing with right now!:hug: I hope you can find something soon to ease his spasms and pain and will keep you both in my thoughts!! I also suffer from Myoclonic Spasms although mine are as a result of another condition (Complex Regional Pain Syndrome). My leg bounces in the air on it's own uncontrolably and can be very painful and embarrassing - especially when I am out in public and it starts happening as people often tend to stare at it. Has your son tried any muscle relaxants or anything yet? I was put on quite a few muscle relaxants such as Baclofen, Diazepam, Kenadrin but haven't found anything that helps really at the moment. Here is a video of the spasms I have in my leg: http://www.youtube.com/watch?v=xIXakErNBpE Take care and please send your son my best wishes. If you ever need anyone to talk to, please know that I am here for you because I understand some of what you are going through!! Alison. |
myoclonus relief
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