NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Multiple Sclerosis (https://www.neurotalk.org/multiple-sclerosis/)

- - Narcoms (https://www.neurotalk.org/multiple-sclerosis/89980-narcoms.html)

The NARCOMS Registry is an active database of over 34,000 individuals who have MS. It provides a way for individuals with MS to confidentially provide detailed information on their course of disease as well as their treatment. They are seeking to raise awareness about MS and increase the enrollment numbers in the Registry to help further research efforts and eventually find a cure.

If you are interested in participating in their research, here is a link:
http://www.narcoms.org/forparticipants

~ Faith

Hi Faith,
Very Good! Thank you Faith. :)

This is a good reminder for people to join. I have been a member since it started. Every six months they send you a questionnaire booklet. Or if you want, you can do it on-line by giving them your e-mail addy.

If you have numbers on top of your name, in the mailing, they have decided to study you more closely. All PWMS are used in the database.

They expect the booklet mailed back to them within two weeks, in their postage paid envelope. You can save them the money for postage by doing it on-line.

Dr. Timothy Vollimer, a MS Specialist and Researcher, and his team, work hard in order to keep up this database. If you join they send you a free copy of their quarterly magazine, which costs doctors a lot of money to receive to keep up with the latest research. It is a great magazine.

They will inform you of clinical trials available, and let you know if you might be eligible for one if you wish to participate.

About: http://www.narcoms.org/
To enroll: http://www.narcoms.org/enroll

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Thanks, Lady, for providing additional information.

~ Faith

Yes, I've been a member also for a number of years. They've moved their headquarters twice since I originally joined. It's encouraging to read of people who are actually searching for that elusive cause/cure.