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My son is almost 4 years old. At birth he was ok, as he went for his routine dr visits and vax they noticed his hard was growing very fast. At that time they suggested that we go to a neurologist and that neurologist said his ventricals were enlarged and needed surgery. we went to childrens hospital they said surgery. we went to st christophers hospital they said no. than they both agreedd to see what happens. at this time he is smart and his head is still large and he is active he is very small for his age only weighing 22 pounds at almost 4. just wanted advice if i should worry or am i being too paranoid:grouphug:

You're not paranoid at all. I'm 53 years old. When I was a child, everyone called me jughead...I had an extremely large head (Size 7 hat). My parents ignored it. I used to see things in miniature. Again my parents ignored it. Then, at 41 years old, I was driving home from a work assignment out of town when the road started to spin. I was rushed to hospital, flown by air ambulance some 500 miles south to Toronto, where hydrocephalus was discovered. My parents insist to this day they never knew about hydrocephalus, but I was never tested. I struggled at school and later at work, but often wonder what would have happened had I had shunt surgery earlier in life. Mind you, I worked 25 years in the newspaper business, so I also wonder what would have happened had my hydrocephalus been discovered. Would I have seen the world? (I've been to Cuba and Mexico) Would I have covered some major news and sports events as a major metropolitan newspaper reporter and sportswriter? But in the end, I believe it's important you know where you stand. Then maybe you can make an informed decision as to what to do next. If your son is not suffering, maybe you can wait. If your son undergoes shunt surgery now, he will no doubt need a second or maybe third surgery later in life to change the tubing as he grows. If he's not suffering from headaches or seizures, maybe you can wait. It's not an easy decision. But I still find myself wondering if my parents knew about my condition all along and didn't tell me. And I still think at some point earlier than at age 41, somebody should have told me something.

thank you so much for your advice. i am sorry they didnt catch it at an early age. i am just tossed up about it i dont want to make the wrong choice for him. he has had so many test and one dr says dont do it and the other one says consider it. i feel like no one in my family thinks he should get it done either. they said that i am to protective of him and worry too much. i hope i make a good choice thanks again and once again sorry about your misfortune:hug: