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-   -   imuran pain (https://www.neurotalk.org/myasthenia-gravis/91279-imuran-pain.html)

Alan53 06-27-2009 06:11 PM

imuran pain
 
my Neuro put me on Azathioprine 6 weeks ago on a 100 mg a day and blood test each week for a month then every 3 months i take 60mg of preds every other day so my problem is that since starting the new meds ive felt real pain
have trouble walking as my knees are painful and my arms and wrist get bad headaches if i do things like go out and feel really so drained and weak
my dr said come bac next month just wondered if its normal
alan

Scots Kat 06-27-2009 06:32 PM

Hi Alan,
I'm thinking you should see your neuro. I went on azathioprine about 16 months ago and had no pain or any problems. My dose is higher than yours (150 mg daily taken in two 75 mg doses) but I think the dose is determined by your weight. I also had loads of bloodwork and it always came back normal. Anyways I just think that your reaction seems a bit extreme and it would certainly worry me. Hope everything else is good with you!
~Kathy

redtail 06-27-2009 09:47 PM

Hi Alan,

I use to be on azathioprine, but didn't have any pain with it or headaches or feeling weak. I did have loads of blood tests tho!!
Maybe a call to his office voicing your concern might help put your mind at ease. Sorry I couldn't be of more help
take care
Kate

Alan53 06-28-2009 04:42 AM

i was just hoping to be able to get off the preds
and i have to see my Dr which i did and told him so he said see him next month i know that everyone has to have lots of blood test so maybe the next one may show something
thanks Kathy yes it seems not right even if the bloods have been okay
and you were okay as well Kate ............i was told only if i had a sore throat and flu symptoms or bruising to see my Dr
alan:hug:

erinhermes 06-28-2009 02:21 PM

Hey Alan!
 
Hey stranger! It was so great to hear from you, though I am sorry it is b/c you don't feel well. I am also on Imuran right now - just cut down from 150 mgs a day to 100, but have not experienced any real pain due to it.

I would call your dr and see what is going on.

Other than that, how are you? Is your mom there? How is your daughter? Did she get all moved in?

Big hugs!
Erin:D



Alan53 06-28-2009 03:26 PM

well im hoping my Dr will get in touch with my Neuro im going bac in a few weeks and having another blood test so will have to wait for now i miss being able to walk about and if i do i later feel totaly drained and a severe headache
thanks Erin
im off to see my mum at the weekend and then she's comming bac with me so that will be nice how coming Daughters always worry about their dads she's in ther flat but still stays at mine quite often
hugs alan:hug:


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