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-   -   Need help finding specialist/expert for syringomyelia in North Texas (https://www.neurotalk.org/arnold-chiari-malformation-and-syringomyelia/91658-help-finding-specialist-expert-syringomyelia-north-texas.html)

jreid 06-30-2009 12:03 AM

Need help finding specialist/expert for syringomyelia in North Texas
 
Hi,
Can anyone send me a list of experts or specialist in syringomyelia in N. Texas or surrounding states. So far my syrinxes are to narrow to operate, but lengthening. I am having alot of pain and numbness. Found a pain doc, but need someone to help with numbness. I drive for a living and can't find any employment that doesn't involve lifting also. Told not to lift over 10-15 lbs. I need to find a resource that will help me retrain and keep some kind of income coming in. I have 1 child in college and 2 in highschool. I don't know how to get disability, at least while I retrain. I can't walk away from my job or my family goes under and I am afraid I am endangering others. I am an at will employee so there is no assistance from my employer. My supervisor literally puts her hands over her ears when i have tried to explain this. If I can't drive they don't care.

Any ideas?????

razzle51 07-04-2009 09:04 AM

drs
 
Dr. Richard Jackson in Dallas is patient recommended

razzle51 07-04-2009 09:07 AM

Quote:

Originally Posted by jreid (Post 530962)
Hi,
Can anyone send me a list of experts or specialist in syringomyelia in N. Texas or surrounding states. So far my syrinxes are to narrow to operate, but lengthening. I am having alot of pain and numbness. Found a pain doc, but need someone to help with numbness. I drive for a living and can't find any employment that doesn't involve lifting also. Told not to lift over 10-15 lbs. I need to find a resource that will help me retrain and keep some kind of income coming in. I have 1 child in college and 2 in highschool. I don't know how to get disability, at least while I retrain. I can't walk away from my job or my family goes under and I am afraid I am endangering others. I am an at will employee so there is no assistance from my employer. My supervisor literally puts her hands over her ears when i have tried to explain this. If I can't drive they don't care.

Any ideas?????

here are some more Drs in Texas that are patient recommneded
Dr. Geraldo Bueso
Endocrinology & Internal Medicine
1213 Herman Dr, Ste. 330 Houston 77004
(ph) 713.520.8385


Dr. Mark D'Alise
Neurosurgical ***. Of Lubbock
3506,21st Street Suite 4
Lubbock Tx
Phone # 1-800-687-5437.....OR
1-806-792-7246


Dr. Sam Finn
Neurosurgeon
Baylor Hospital Dallas
(ph) 214.823.2161

David W. Barnett, M.D.
Baylor University Medical Center
3600 Gaston Ave.
#907 Barnett Tower
Dallas, Texas 75246
Office Phone # 214-823-2052
Fax # 214-823-3797


Dr. Richard ("Rick") E. George

Pediatric and Adult Neurosurgeon
3506 21st. Street, Suite 402
Lubbock, Texas 79410
(806) 792-7246


Dr. Rob Parrish

6560 Fannin Street, Ste 1506
Houston, Texas 77030
(ph) 713-790-3333

Dr. Ayaz H. Malik
Neurosurgeon
3900 W. 15th Street,
Ste 105
Plano 75075
(ph) 972.867.2550


Dr. Rosa Tang
Neuro-opthamology
1315 Calhoun, Ste. 1205
Houston 77002
(ph) 713.942.2182
(fax) 713.942.0265


Dr. Richard Jackson
Dallas Neurosurgical Associates
Presbyterian Hospital of Dallas
Professional Building III
8230 Walnut Hill Lane
Dallas, TX 75231
(214) 750-3646
www.dallasneurosurgical.com

rodderrs 10-25-2010 09:32 PM

syringomyelia in N. Texas
 
Quote:

Can anyone send me a list of experts or specialist in syringomyelia in N. Texas or surrounding states.
Try neurologist Dr Harney Richardson Tx 972 783 8900, served my spouse well for 20 yrs.
Disability: get a lawyer - it's hopeless applying without one.

theresa2213 02-04-2012 09:11 AM

Hi I was just wondering if you ever found a good doctor? I have the same problems. When my syringomyelia was stumbled upon by accident it was because I had sustained a neck/back traumatic injury in the Army. They medically retired me and sent me on my way. My pain is a lot worse and I don't want to end up peeing myself or in a wheel chair because my VA hospital is not very good at listening to things that aren't very common. I have been out almost 3 years and they have never even done a mri:( The Army attest did one every 90 days to keep tabs on it. Not seeing it in 3 years has me scared that it may have really grown in size, especially since my pain is worse and I feel like I can't hold any body heat most of the time. Any help you could give me would be great:)

lori del sol 03-01-2012 04:15 PM

Quote:

Originally Posted by theresa2213 (Post 848182)
Hi I was just wondering if you ever found a good doctor? I have the same problems. When my syringomyelia was stumbled upon by accident it was because I had sustained a neck/back traumatic injury in the Army. They medically retired me and sent me on my way. My pain is a lot worse and I don't want to end up peeing myself or in a wheel chair because my VA hospital is not very good at listening to things that aren't very common. I have been out almost 3 years and they have never even done a mri:( The Army attest did one every 90 days to keep tabs on it. Not seeing it in 3 years has me scared that it may have really grown in size, especially since my pain is worse and I feel like I can't hold any body heat most of the time. Any help you could give me would be great:)

Hey everyone, I would also like to know if anyone has been to any of the doctors listed and how their experience went? Theresa, have you found anyone yet? I am also in North Texas (DFW) and would like to hear someones personal experience before I visit a doctor as I will be paying out of pocket and cant really "doctor shop". My symptoms have recently got very bad and I need help, it's causing a lot of grief. I know this is an old thread but any help will be appreciated :)

theresa2213 04-17-2012 09:22 PM

Quote:

Originally Posted by lori del sol (Post 857069)
Hey everyone, I would also like to know if anyone has been to any of the doctors listed and how their experience went? Theresa, have you found anyone yet? I am also in North Texas (DFW) and would like to hear someones personal experience before I visit a doctor as I will be paying out of pocket and cant really "doctor shop". My symptoms have recently got very bad and I need help, it's causing a lot of grief. I know this is an old thread but any help will be appreciated :)

No, I'm in the same boat as you when it comes to having to
Pay out of pocket:( Did you see anybody yet? If you don't mind me asking, what are you doing as far as pain management?


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