Chiari Malformation type I
 

Hey there!

I've never posted any threads before but I am looking for some information on my conditions.

First of all, I have just been disgnosed with Chiari Malformation type I. I've done a bunch of research so I have a good idea of whats going on but now it looks like surgery might be the only option and thats what makes me nervous. I have an 11mm protrousion as far as my chiari goes and my syrnix went from 8mm long and 2mm wide to 2cm long by 3mm wide in 5 months. I have a neurologist appointment to find out exactly what this means in a month but I just can't seem to find information regarding measurements anywhere. I just don't know at what size a syrnix becomes dangerous or what is considered a "serious" chiari protrustion.

The second thing I have a question about it that during my last MRI I found out that i have developed a kink in my brain stem. I can't seem to find out what times means or what problems this can cause. The only information I can find it regarding fetal brain kinks.

So, I was wondering if anyone out there has any information about this they can give me. My doctor has told me that I can't do push-ups, sit-ups, run, jump, squat, lift more than 20 lbs or be on my feet for more than 30 minutes. I was also was wondering are these just precautions or can these things really make my condition worse. I am in the military so I figured maybe they were just over reacting but if anyone has any information regarding anything I would really appriciate it! Or even if someone has a similar experiance they would like to share, anything is welcome! Please e-mail me at or just respond to this. I'll get an e-mail first but either way is fine. Thank you!

Welcome to our community and thank you for your service.

I've seen a few posts regarding your condition. Not a lot out there, huh?

Sorry about your dx. Give it a little bit and maybe someone with more knowledge will come along.

Here is a link to chiari malformation

http://neurotalk.psychcentral.com/forum71.html

I hope you find answers and peace in your life

(Broken Wings)

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Hello semilesh, and welcome to NeuroTalk! We're so glad you found us! :D

This is a very nice place with lots and lots of caring, friendly, and very helpful people. :)

Below is a link to the General Health Disorders. You may find some help or answers there with your brainstem problem.

http://neurotalk.psychcentral.com/forum2.html

I wish you all the best. :hug:

Hello and welcome to NeuroTalk! I see you've been given directions to the Chiari forum so please make yourself at home and join in wherever you feel comfortable. :)

[COLOR="Blue"]Hello semilesh and welcome to NT. my dear niece had surgery at Wake Med in NC for correction of her Chiari's. She had been living w/the headaches and pain for so long, but her surgery became a necessity and she is now recuping and glad she is over that hump.

As Brokenfriend already pointed you in the direction of the Chiari forum, I will just add that I am glad you found us and I hope you take a look around and make yourself at home.


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