NeuroTalk Support Groups - Looking for someone who understands NCV reports

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lynxgal

07-09-2009 08:14 PM

Looking for someone who understands NCV reports

Anyone on here understand these ms readings and amplitude readings??

let me know please.

I have received my daughter's NCV report and the bottom line is

conclusion: the studies give evidence for a primary demyelinating motor and sensory neuropathy in the nerves tested in the upper and lower extremities.

I'm REALLY concerned about how low her readings are she's only 11 and they are definately worse then mine.

Kitt	07-09-2009 08:24 PM

Have you called and asked the doctor what the readings mean and what they indicate? They should be able to tell you.

lynxgal

07-09-2009 08:38 PM

Hi Kitt,

No haven't had a chance to. My hubby picked up the report tonight on his way home and now the darn doctor is on holidays for 2 weeks....grrr.

diagnonsense

07-09-2009 09:15 PM

I really like this site: http://www.neuro.wustl.edu/neuromuscular/naltbrain.html

You can click on demyelinating and up pops all the things you can have.
If you are more motor or sensory, look on the disorders that indicate such.

CMT does pop up, and with you having PN it would make sense.

Your daughter would have whatever type you have, but may be effected more so.

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