which forum best for ppl with Ataxia
 

I met a distant cousin with ataxia. She has a local support group and good family system. I just wanted to direct her to somewhere in NT.

Which forum should I recommend?

I know, all of them. It was just that I wanted the medical section recommended first.:)

Cynthia

Hi Cynthia, I was sorry to read about your cousin. Ataxia can be quite disabling for some.

I'm not 100% sure which forum would suit best, but I'm thinking Movement Disorders would be a good place to start. Here's the direct link for you: http://neurotalk.psychcentral.com/forum65.html

I hope she soon gets help and doesn't have to suffer for too much longer.

Some ataxia patients have posted in this forum in the past also.

Here is a search result for those:
http://neurotalk.psychcentral.com/se...chquery=ataxia

Try both locations. With a less common question, hitting more than one forum to start may get more eyes viewing.

Also there have been a few patients in the past with Ataxia which responded to the Gluten Free diet.

You can check The Gluten File for more information about that:
http://neurotalk.psychcentral.com/thread1872.html
There is a link specifically to Gluten ataxia on that forum.

Here in the UK there are two Ataxia clinics. I am a patient with the Sheffield Clinic, under the care of Dr Hajavassilou who is researching into the gluten causes of ataxia. A couple of MRI scans proved my ataxia to be of cerebellar origin. Whilst nothing can be done to sort out the ataxia, he has given me an open appointment, should things get worse.