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-   -   PN and CFS (https://www.neurotalk.org/peripheral-neuropathy/95713-pn-cfs.html)

sunnydee 07-30-2009 10:14 AM

PN and CFS
 
Does anyone in here have PN along with Chronic Fatigue Syndrome. I had PN symptoms first, but then about 6 months ago, I started to get CFS symptoms. At first I thought maybe Fibromyalgia, but no tender points.

I mentioned this to my GP, but he said the two don't run together. I was just wondering if anyone else has similar symptoms. I won't go into PN symptoms, since I am in PN forum and everyone knows what they are, but CFS symptoms include:

fatigue
severe headache
trouble staying asleep
joint pain
sore throat
swollen glands
trouble with vision
memory and congnitive difficutlies

BonDon 07-30-2009 07:11 PM

Sunnydee,

I was diagnoised with Chronic Fatigue in the early 90's. A few years back tested positive for Lyme Disease.

Problems similar to the ones you are having.

Overtime I developed Peripheral Neuropathy. I have fatigue with numbness and pain, but still have problems with the immune system, and have been having more fatigue.

I do feel like you can have both problems going on at the same time.

I have had joint pain, but the Neuropathy is a pain hard to describe. Really painful.

Have you had EBV or CMV viruses?

Hope that you get to feeling better.

BonDon



BonDon

EE03 07-31-2009 05:59 AM

I also have CFS, diagnosed for about a year and half before the PN was diagnosed. I incur all the symptoms you describe except the swollen glands and vision trouble. I'll have to ask my doctors about any link. Take care

daniella 08-05-2009 08:27 AM

I had thought and I could be wrong but the trigger point test is not always accurate in dx. I remember a doc thinking I had fibro which I don't or myofacial pain. I am not sure the difference but maybe you want to research that as well.

darlindeb25 08-05-2009 06:16 PM

I too, have CFS.

Quote:

fatigue
severe headache
trouble staying asleep
joint pain
sore throat
swollen glands
trouble with vision
memory and congnitive difficutlies
The least of my symptoms is swollen glands, but that happens too. I have been experiencing the sore throat all week, usually at work. I just woke up from a nap, having fallen asleep after sitting down on the couch after supper. I am much better now about staying asleep...I don't know why this worked, but I gave up dairy, for other reasons, and my insomnia went away. I have a headache, every hour of every day, it never goes away. Just last week I was evaluated by my optimetrist for trouble with my vision, I am seeing a glare in my right eye. Forget about my memory, it seems nearly non-existant.

My PN has probably been around for 10 years or more, just getting an official diagnoses a few years ago. My CFS was diagnosed this last Feb. I don't know that they go hand in hand...it's possible for one person to deal with many problems...lucky us huh?:grouphug:

Aussie99 08-05-2009 07:18 PM

Quote:

Originally Posted by sunnydee (Post 544836)
Does anyone in here have PN along with Chronic Fatigue Syndrome. I had PN symptoms first, but then about 6 months ago, I started to get CFS symptoms. At first I thought maybe Fibromyalgia, but no tender points.

I mentioned this to my GP, but he said the two don't run together. I was just wondering if anyone else has similar symptoms. I won't go into PN symptoms, since I am in PN forum and everyone knows what they are, but CFS symptoms include:

fatigue
severe headache
trouble staying asleep
joint pain
sore throat
swollen glands
trouble with vision
memory and congnitive difficutlies



I had very bad PN 4 1/2 years ago. I was also very very tired and thought I may have CFS.

My thoughts now:
I had back surgery 8 years ago. No other health problems at the time.For months afterwards I was completely exhausted to the point of collapse.

Fastforward to when I came down with severe PN. My body was a train reck. I think that when our bodies are damaged, the healing process requires extra energy/life force which is needed to repair/restore the damage. I think this causes that feeling of fatigue. The greater the damage the greater the recovery period and the more resources/energy needed by the body to repair.


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