NeuroTalk Support Groups - new members posts from the RSD photo sticky thread

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - new members posts from the RSD photo sticky thread (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/95845-posts-rsd-photo-sticky-thread.html)

new members posts from the RSD photo sticky thread

Quote:

Originally Posted by bobinjeffmo (Post 488772)

I hope these pictures won't scare anyone, but trust me, RSD can get really bad. This past January I finally had the left leg amputated above the knee and we're just hanging on tight till we loose the right leg. It's not if I'll loose that one, just when.

The RSD started in the left leg in 97. 4 years ago it crossed over to the right. Now talk about spreading fast. Between circulation, chronic infections and blood clots, it's always something yet I just grin and bear it with a bad joke or a laugh. Laughing is always better than crying.

Even though RSD is hard to live with, I only have to remind me of what it would be like living with his awful disease in another country such as India or Russia. Then what would life be like on a daily basis? I know my blessings, I hope everyone else remembers them too. Bob.

I just found this site I am confused about RSD but was told I need to look on internet and you are here. how many years for you now if you don't mind

bobinjeffmo hi from shaky2009

Quote:

Originally Posted by bobinjeffmo (Post 487018)

Hi,

These pictures were taken shortly before I had my left leg amputated above the left knee this past January. The right leg is also facing amputation due to decreased blood flows, chronic deep vein thrombosis and infections.

Pain levels are rather uncomfortable, but thanks to rather heavy loads of oral narcotics plus my morphine pump (I just had my 2nd one installed a month ago), I usually keep it at a level I can live with.

Anytime I'm just about to loose my mind in pain, I go out and find something I can do for someone I love or care for, because when I do I always get en endorphin hit that gets me through the rougher spots. Give it a try, and you'll see for yourself it really does work! Bob.

I am seeking info on rsd because I am not healing or getting my strength back my whole right side of my body shakes my right arm so bad I loose control surgery on right foot I was hit with a machine at work march 2008 work comp said not work related beyond that it feels like my nervous system was hit by lighting and of course the pain is out of control I am still at the point of doctors passing the buck. I feel like my body is shutting down my mind too. I will pray for you and everyone I have seen on this site!!!!!!!!! Can you give me advice if not to much trouble that I can use to get low-income doctors to pay attention I get remarks like oh that is odd I use rubbing alchol by the bottles full and belive I hold some systems off I have 2 sores on legs that don't heal and some small ones on arms always made me think of diabites. I have non stop pain down both arms back neck legs. I just found site today and got on line.

how long have you had rsd,,,and where did it start at,in your body ,and has it leveled off or have you had any remissions?,bobber

Quote:

Originally Posted by bobber (Post 525267)

how long have you had rsd,,,and where did it start at,in your body ,and has it leveled off or have you had any remissions?,bobber

It could of started 1998 and I kept pushing on but march 2008 a new injury to right leg I tried and tried and am still trying to fight but I have to have surgery on upper spine before the nero doc will address the pain sysdrome.In 1998 I broke fibula and tiubla in lower right leg. I would get hot red places on leg the docs took out meatl afraid of bone infection. after new injury my leg feels not just numb but lioke it is dying but I slap it around and keep it going. it is my right leg showing um like small unhealing sores

Quote:

Originally Posted by DDayMBB (Post 110763)

Have been DX with TOS and somewhere along the line CRPS, the cold make my hands burn so, that even during mid summer have to wear gloves in the frozen food section. The other day was out for a walk in the woods, when I got done with my walk, I removed gloves (they were not insulated,but fairly warm any way) and as usual my fingers were one fire, thoough I was left with bue/purple blanching almost like a bruise. Was wondering if anybody elses' fingers look like this, fro the cold???

hey i have that problem also but its with my foot when i go to the frozen section my foot freezes up and it takes me about 3 hours to warm it up im not able to walk yet i had my surgery on my foot 2 months ago 3 days after surgery they tell me i have rsd i hope there is a cure for this

I moved these new member posts from the RSD photo thread to this new thread for hellos and sharing.