Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 08-26-2009, 08:31 PM #1
keep smilin keep smilin is offline
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Join Date: Aug 2009
Posts: 851
15 yr Member
keep smilin keep smilin is offline
Member
 
Join Date: Aug 2009
Posts: 851
15 yr Member
Talking I happy to be here..!! Can you answer a question for me??

This is my first posting here but I must say I have been reading much information on my condition, RSD from this forum. You have all been so helpful and I am very happy to able to talk with you.. I have had RSD now for 2+ years beginning in my right knee, post injury and surgery. Sadly, I was diagnosied on my birthday...... and I am now having pain on my left side, my knee, foot and hip. As we all know..what a 4 headed animal RSD is, never the same for any of us. So complicated and painful!! I have had 4 nerve blocks, tried many meds which I could not tolerate and finally I had a SCS placed in my back last September. Unfortaunately, the SCS made it worse. I am now awaiting a consultation at Drexel next spring. My question is does anyone ever reach a zero pain level??? I know in my case, I have never been without the deep, burning, hot glass pain..24/7 for the entire 2 + yr.since I was diagnosised. I walk with the aid of a cane, decorative one may I add but necessary as walking is so painful and days are very long... I so appreciate any insight anyone can share with me and again.. It's my pleasure to connect with you all!!! Thanks for your support... We are in this together...
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AintSoBad (08-27-2009), Dew58 (08-27-2009), loretta (08-27-2009)
 


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