Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-03-2009, 10:34 AM #1
CZZ74 CZZ74 is offline
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Originally Posted by AintSoBad View Post
I often simply tell people, (or ask, if I suspect someone has, and is trying to describe RSD, and they're not yet diagnosed), that my bones feel as if they're on fire, while my skin feels as if it's in a blast freezer.

Being around so much of the public as I have, I've sent at least a dozen people to doctors, and given them RSD info. It solved their "searching for an answer", which so many of us know so well....

I got to know that "look on the face", and when they mentioned pain all over, or one spot, I was able to zero in. The thanks I've gotten are sweet, but sad....

Pete
Pete I know exactly what you are talking about, especially the freezer blast with the fire inside, also I see the glazed look on many peoples faces when I am trying to explain my pain, im not sure if that is what you were saying, but have you ever noticed that, they just kind of go away. thank you for sharing this, cz
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Old 08-31-2009, 05:51 PM #2
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Grin the hip bones connected to the...thigh bone...

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Originally Posted by CZZ74 View Post
Hi everyone, this am like many, I awoke with severe bone pain in my left shin, tibia. to the point that any weight on the bone could make me feel like i might black out. I am curious if anyone else experiences episodes of extreme bone pain, not continuous aching, not muscular, but deep dull bone pain, mine become sharp only if I go to bare weitht on it.

This same type of pain is why when during the first year when i was undiagnosised -i thought it must be bone cancer. this today was in my left leg, orginally it started in my original injury leg the right.

Im not sure i have this severe of bone pain any where else except perhaps my spine and that is hard to distinguish as I also have such severe buring in my back as well.

If you do have the bone pain, pleaes describe best you can,, what you do for it, other than wait it out, and how severe it becomes please.

The frequency of my bone pain attacks is increasing each year.
Does anyone know any medical reason for the escalation?

thanks so much cz
Hi CZZ74. I too have deep bone pain, it is probably my most constent and worse pain, at times it is worse than the burning. Mine is in my femur and hip mainly, but at times it decides to affect my knee and tibia....Oh joy! Anyway. The best way I know how to decribe it is like my bones are in a vice while many tiny electrical currents are "zooming" up and down my leg. That's when it is acting up...but for the most part it's a dull, achy, annoying pain. I haven't found too much that makes it feel better other than rest....but I have to sit in a recliner with my feet up and it reclined. If i sit for too long my whole thigh and groin begin to burn while my foot processeds to falling asleep and going ice cold. It's kinda wierd...having the top half of my leg on fire while the bottom half is frozen....bet a physicist would have a field trying to explain that one I just try to manage the best I can and keep moving when I can't sit and relax...I also try humor, it tends to help me cope with things. Hope all goes well.
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CZZ74 (09-03-2009), Sandel (09-03-2009)
Old 09-03-2009, 10:41 AM #3
CZZ74 CZZ74 is offline
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Hi CZZ74. I too have deep bone pain, it is probably my most constent and worse pain, at times it is worse than the burning. Mine is in my femur and hip mainly, but at times it decides to affect my knee and tibia....Oh joy! Anyway. The best way I know how to decribe it is like my bones are in a vice while many tiny electrical currents are "zooming" up and down my leg. That's when it is acting up...but for the most part it's a dull, achy, annoying pain. I haven't found too much that makes it feel better other than rest....but I have to sit in a recliner with my feet up and it reclined. If i sit for too long my whole thigh and groin begin to burn while my foot processeds to falling asleep and going ice cold. It's kinda wierd...having the top half of my leg on fire while the bottom half is frozen....bet a physicist would have a field trying to explain that one I just try to manage the best I can and keep moving when I can't sit and relax...I also try humor, it tends to help me cope with things. Hope all goes well.
Hi Penquin, so many places, im so sorry, have you tried heat? that helps me a lot. And yes rest, when my is active i have no choice but to lie very very still absolutely can not put pressure on it, it definitely takes the pain to a place i can not stand. If I felt like I couild, which i usally dont ! I do think an epsom salt bath would help a great deal, especally for you as the area is so large. Let me know if you try that ok? and thank you for posting. sincerely cz
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