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| Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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01-04-2007, 10:04 AM
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Hi Lisa,
I filed for disability back about 5 years ago, and of course was denied and my Dr wanted me to contest it well I did but according to the SSA they never received my papers in the mail where I was contesting their decision. Of course I would have starved to death on what I would have been able to draw. At that time I had been self-employed as a hairdresser for 20+ years and could not do that anymore due to having to stand and with the RSD being in my foot well I just can't stand for hours a day. I have been able to find work that I could do and am much happier than if I chose to stay home. Myself, I am just not able to stay at home because it drives me crazy so I would much rather work as long as I can find work that I can do. I know it isn't easy having to get up and get motivated when in such pain but so far I have been lucky and would not work for someone who wasn't compassionate about my disease. I guess if I had to try and work in a wheelchair I would just to be able to work. If I just lay around and take it easy for more than a day my Fibromylagia pain is a lot worse than if I keep active, and it seems that my RSD hurts more if I don't move much. Explain to your SO and his mother that you would rather keep working as long as possible and you appreciate their concern but that stress doesn't help your pain at all. Also like someone else mentioned, I was told by SSA and my DR that I could not be working and file at the same time. Keep us posted.. You are in my thoughts and prayers as always.. Love, Janet |
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