Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-30-2009, 08:58 PM #1
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Default Savella,

Has anyone tried this med?

It is new. My Dr. just gave me a 2 weeks sample supply. It is for Fibromyalgia.

Ada
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Old 09-30-2009, 11:30 PM #2
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Ada,
(Sweet one),


Let us know how it works, huh?

love to ya,

Pete
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Old 09-30-2009, 11:43 PM #3
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hey hun... sorry so long no talk

i havent talken this.. i hope that it works for you !!


carrie
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hope this finds all in less pain
.



rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




please check out our website to help bring awareness to RSD!


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Old 10-01-2009, 01:03 AM #4
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Originally Posted by angelrsd View Post
hey hun... sorry so long no talk

i havent talken this.. i hope that it works for you !!


carrie
Hi, I haven't heard of that drug, but hope it works for you. I'm taking Cymbalta for Fibro and depression. Still have flare ups with stress and weather, but haven't had anything better. Take care, loretta
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Old 10-01-2009, 08:41 AM #5
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Default Hi,

I started this last night. The salesman brought in some samples and talked to my Dr. and he put my name on one of them and laid it on his desk. I might be the guinnea pig here. LOL He is very picky though about what he takes from salesmen though.

I did read up on the side effects and they don't seem too bad. One is possible weight loss. If one causes weight gain, I stay away from it. I learned that from the Lyrica.

I will let you know how it does. Loretta, I tried the Cymbalta and couldn't take it. I am not able to take most depression meds. This one says it's not a depression med but works like one but is for Fibro.

Ada
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Old 10-04-2009, 09:04 PM #6
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Default I tried it! poor response

Ada, I do hope it helps you...I've been dealing with extreme pain in my hands up to my shoulders, seemed to respond somewhat to ibuprofen & naproxen (aleve), just not enough...so my pcp gave me the savella to try...the previous drugs are contraindicated so I stopped them & relied on tylenol (rather high doses) & darvocet to help with pain....after 3 weeks with no relief, rose one morning & could not open my hands or raise my arms even to put on clothes...stopped the savella & went back to those 2 drugs & was improved within 24 hrs...it is still very painful, but at least I'm functional & the response to pain drugs is good....was very sorry that the savella was a bust, my pcp will not be happy, he thought it was the answer.....EMG in june showed carpal tunnel compression, july surgery did not improve it & the second EMG a week ago showed no changes whatsoever.....this upper extremity pain has been since early June & I cannot seem to resolve it, tho it has shown steady minimal improvement, but hands are still painful with restricted movement....

Dottie
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Old 10-05-2009, 11:38 AM #7
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Default Hi Dottie,

Thanks for the response. I am not seeing anything right now from the Savella myself. I just uped my dosage according to the packet but it made me more depressed. It's early for it but I'm wondering if it will do anything even for the Fibro.

As far as the CTS, I am sorry the surgery didn't help. I wore braces for over a year that were special made for me and they helped. I also got triggerpoint injections in my hands which hurt but they helped also.

Hope you find some relief from the pain soon.

Ada
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