Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-13-2009, 09:28 PM #11
debbiehub debbiehub is offline
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Default Hbot

You have to go to an independent HBOT- They will not take RSDers in the ones connected to a hospital....United Health Care covered my 30 txs for me;; Unfortunately it didnt help me but it has helped others!

Deb
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Old 09-14-2009, 10:19 AM #12
daniella daniella is offline
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My mom and I called a few places on HBOT after speaking to the staff in Tampa who does the most for RSD. I forgot but there is a certain chamber that is better supposivly but many use it. I think they stated that if you see no results after 20 or so they stop it. Most insurances and major hospitals will not cover or do this for RSD or nerve conditions. You have to find a free standing one. You have to either get a physical and ekg I think prior to make sure you are ok to undergo this. Many offered to show me around and a tour. I am blessed I could of done it but right now am putting it on hold. I guess what bothers me on some of these types of treatments is I feel it is a sales thing. Mryan I hope you are on here researching people who have conditions to give better care not as a way to sell so to speak. It really bothers me as one office I called about HBOT tried to sell me these special booties and another not for HBOT but sell products on a website. Just not right to me and I have heard of others who get taken advantage of due to wanting pain relief.
On a side note though I am too sensitive for this I feel as I don't let someone touch me even is acupuncture I was suggested. When I spoke to the person about this they did say you can have the needles not in the rsd area for ex if you have leg pain like I then they put it in your ears. It is not so much about making the pain go from what I heard but more about helping with anxiety,appetite,sleep which all in turn helps one feel less pain.
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Old 09-14-2009, 05:05 PM #13
ALASKA MIKE ALASKA MIKE is offline
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thanks to DianaA for telling me about her experiences. i called canada and talked to them back in May 2009. it will cost about $4000 for 40 dives in 20 days and that includes staying there. so a $1000 plane ticket will bring it to about 5 grand to try HBOT. i have been waiting til this fall or winter when i am at my worst so i can see exactly what HBOT can do for me.

If any of you can wait til winter and want to try HBOT, maybe we can plan a trip together so we can keep each other company (pass the time etc).

Mike
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DianaA (09-14-2009), krank (09-16-2009)
Old 09-14-2009, 08:38 PM #14
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Default Great Idea!

Mike,
You will find the staff at the camp, just an amazing caring group of people. You will also see mothers of children with CP, that feel blessed by each and every improvement they see in their child. You will see an amazing amount of love between mother and child. Also everyone their will be on the same mission....healing! I'm sure you will be touched.
I truly hope you gain benefit from the treatment and pay special attention to improvement even weeks after the treatment. It takes time for new micro vascular systems to grow. Try and do all 40 dives.
When I was there there was a parent who had an ear infection and couldn't take her child in, so I took the child into the multiplace chamber with me. Go with an open heart and mind. I think it would be amazing if someone else could do this with you. Regardless, you will leave with life long friends.
There are usually people there with cars that will offer you trips into town and dinners out on weekends, or for grocery shopping. I'll give you hints on the restaurants later. Try "Chez Piggy" if you get the opportunity, fantastic. If Dots Taxi can pick you up at the airport, ( I think I still have her number) that will be the icing on the cake. She is amazing! Call and let me know your schedule if you can. Also, I believe that the HBOT has kept me mobile, on much less medication and has prevented atrophy. I wish you the best.
Blessing....di

Last edited by DianaA; 09-14-2009 at 08:40 PM. Reason: spelling
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Old 02-01-2012, 01:25 PM #15
learn_neuro learn_neuro is offline
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Default HBOT for PVL patients

Anyone knows about HBOT facility for kids in houston?
I am planning to get this for my 6 months old daughter who is found with severe PVL in brain. Any idea for treatment for such a young baby. Does it cause any side effects?
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