Hey Guys

I'm wondering if any of you have any experience with taking Dilaudid for your RSD/CRPS?

I've recently been prescribed this (well, Jurnista, which is another name for the once a day hydromorphone HCl tablets) and have found that in the US it's branded as Dilaudid- which is why I didn't get any responses to my Jurnista info post.

But I'm not totally sure if Dilaudid is another name for the once-a-day tablet or the short-acting one, so please correct me if I'm wrong here and it's not a prolonged release med.

I've been on oxycontin for about a year but the side effects are far outweighing the benefits so I'll be swapping onto this new one over the next couple of weeks.

I'd appreciate any feedback about this med. Thanks guys

Hi Cake, I take Opana ER, so far with great success, 2 40mg pre day, I thought you might find tihs comparison about your med interesting. I hope the new Dilaudid brings you relief, sincerely, cz

[I]"[B][FONT="Garamond"]There is a new opioid (narcotic) medication that was recently
FDA-approved for use in the United States. It is an oxymorphone
hydrochloride opioid called Opana manufactured by Endo
Pharmaceuticals. Opana is the first oral preparation of
oxymorphone having previously been available only through
injection or suppository - mainly for hospitalized patients.

Opana (oxymophone) can be compared to Dilaudid (hydromorphone)
similarly to the manner in which Vicodin (Hydrocodone) can be
compared to Percacet (oxycondone). They are very similar
chemically, differing only by small molecular changes in the
presence of oxygen and hydrogen atoms. Dilaudid has been about
the strongest oral opioid available until now. The recentlybanned Palladone (hydromorphone) was chemically virtually
identical to Dilaudid. The FDA asked Purdue Pharma to withdrawPalladone after it was discovered that there was a potentially
lethal interaction effect with alcohol - in large doses, I would
imagine. "
the source of this information was - http://www.mypainreliefdoc.com/aim-opana.htmf

I'm also taking Opana er 30mg twice a day with good results. It has been the best of all the meds that I have taken, and I don't think there are many that I haven't tried. I don't think I'll be changing meds again, unless there is another need to increase the dose, but for now it seems to be fine.

Hugs
Mary

I just had my OpanaER dose increased to #2 /30mg tablets per day. I am able to sleep better; however, it has been raining all day long..buckets, and my back pain has not let up. Other than that, OpanaER, Has been very good to me.

Hi Dew, glad to hear Opana helps you as well, when it rains, I dont think anything can help us. Hope you have a good day, cz

Dilaudid is a very powerfull opoid...its one of the most powerfull ones on the market,,,I'd procede with caution,,if your haveing adverse side effects with oxy[which is also an opoid] then you may acrew even worse reactions in later stages,,or early on with it, forwhich it is srtronger than the oxy in some aspects,,,liver damage and heart attacks are also a concern ,,,all pain meds are brutal on the liver and exspecially on the heart.,,,and as with any medication,a tolerance level always builds,,which over time the dose will increase to surpress the same level of pain inadvertantly,,,,,,,,,,

I have been taking Dilaudid for years for break thru pain. My prescription is for 4 mg. I am also prescribed MsContin ( Morphine Sulfate).
The dilaudid is for short term break thru pain relief. For me...it decreases my appetite and if I take it too late in the day, it keeps me awake at night. Reactions to medicines vary with the individual. I get good break thru relief from dilaudid and have for years.
All meds have side efffects and must be used with caution and knowledge. Under a doctors care with regular visits, monitoring and regular lab testing it may be very helpful for breakthru pain. All the best to you. Di

I was on Dilaudid when I was first diagnosed, but my neurologist and PM conflicted on it. It worked well, but I have been switched back and forth between so many meds in the past year, the only thing I am taking for pain is vicaprofen. I have dual diagnosis pf RSD and I was born with Cerebral Palsy. I have always had some type of pain throughout my whole life, so they haven't come up with a "cocktail" that is right for me. I just past my 1 year anniversary with RSD and I have had little relief.

Thanks for the replies. Diana- I get similar issues with endone- if I take it after dinner it keeps me up all night and I do find I get more picky about what I want to eat if I've had an endone.

Cindi- I'm sorry to hear you're having dramas trying to find a good mix of medications. Wouldn't it be nice if there was some order to this condition-if we all took the same medications and they worked the same for all of us.

I've read about the dosage issue with hydromorphone- that one tablet is like 5 of oxycontin or ms contin, so this is being carefully monitored. I get 10 days worth of tablets at a time and we're starting really slowly, with my dr monitoring it every week. I wish I responded better to less harmful medications, but I don't so I've gotta go with what works. I've had 9 years of this and it's still a constant issue to find a balance of medications and treatments that works well and lets me have some quality of life back. Hopefully this medication will give me that!

x Kate

Good luck cindi with the transfer,,,I used to switch[as other ball players did] from percocet to vicoden,,,the body will get used to one and then you must either add on more pain meds,,or up the dose [which in the end causes advrese affects unforntantly],, alot of adverse effects are caused by the heart ,,but most come from the liver,,rash ,itching,,difficult breathing cognitive problem,ect,ect,,,,Plus as we get older , our bodies wont tolerate the amount of abuse as it does when we get older and as the liver gets weaker , the adverse effects are more common and prominent,And then comes the unknown factor of this disease,for which the names has been changed,, But that is the reason the name was changed from rsd to crps[complex],,no two people have the same symptoms and what drug comboinations that work well with one may not for another,,,,and then we have to watch out for the addiction problem,,,ive fought that several times,,withdrawel symptoms are brutal,,and sometime drugs will add to our issues,,health wise and mental,,,i know im short with people when im on meds and i dont like it,,i try to use the least amount possible,,for which you noted yourself,,,good luck to you,,,,,,,p.s ive found , that exercise [although painfull at times [during and after],,really pushes that beast back into his cage....I like to stay as active as possible,,even in pain,,i have no choice,,,,It even made me smile when i read DianaA diveing alot,,,we all have to do what we must do,,,,prayer are in my regimine too,, I trully wish you well with the new meds and that your monitoring them ,,,,,,bobber